Journal of pain and symptom management
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J Pain Symptom Manage · May 2022
Reliability and Validity of the Japanese Pediatric Version of Memorial Symptom Assessment Scale.
Few instruments in Japanese assess health-related quality of life in pediatric cancer patients. ⋯ MSAS-J is a reliable and valid instrument to assess symptoms among Japanese children with cancer.
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J Pain Symptom Manage · May 2022
Progress update: Palliative care development between 2017 and 2020 in five African countries.
This article provides a progress update on the development of palliative care in five countries in Africa-Kenya, Rwanda, South Africa, Tanzania, and Uganda-between 2017 and 2021, and explores the role of palliative care advocates and the Open Society Foundations in this process. ⋯ The experiences in these countries suggest that mixing advocacy, communications, and technical assistance can lead to substantial progress for patient access although full inclusion in universal health coverage remained uncertain in all but Rwanda.
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J Pain Symptom Manage · May 2022
End Stage Kidney Disease Patient Experiences of Renal Supportive Care in an Australian Teaching Hospital - A qualitative study.
Renal Supportive Care Services (RSCS) were introduced in Australia to provide patient-centred care with a focus on better symptom management and improved quality of life in end stage kidney disease (ESKD) patients managed with or without dialysis. While RSCS have demonstrated clinical benefits with reduced length of hospital stay and symptom burden, there is a gap in understanding the experience of patients referred to RSCS. ⋯ The study found that RSCS support patient-centred and family-orientated initiatives in decision making and control over healthcare management. This is empowering for patients. Additional patient values, needs and wants from the RSCS were also identified and these could be addressed to improve the patient experience. Our findings support the ongoing use of RSCS to improve the experience of ESKD patients.