Palliative medicine
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Palliative medicine · Jul 2019
The use of digital legacies with people affected by motor neurone disease for continuing bonds: An interpretative phenomenological analysis study.
Motor neurone disease is a progressive neurodegenerative disease without cure. Little is known about how young people are affected when a family member has the illness and subsequently dies, resulting in a gap in understanding of how best to support them. One psychotherapeutic approach involves creating a legacy to pass onto the young person, but little research has investigated the use of an emerging format, digital legacies, where videos document a person's life, memories and achievements. ⋯ This study expands the existing continuing bonds model of grief to include an 'autobiographical chapter', creating 'The Model of Reciprocal Bonds Formation'.
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Palliative medicine · Jul 2019
Appropriate frameworks for economic evaluation of end of life care: A qualitative investigation with stakeholders.
The use of quality-adjusted life years rests on the assertion that the objective of the health care system is to improve health. ⋯ Managing symptoms and reducing anxiety were considered to be core objectives of end of life care and fit with the wider health service objective of improving/maximising health. A single objective across the entire health system ensures consistency in the way that resource allocation is informed across that entire system. However, the purpose of care at the end of life is more complex, encompassing diverse and patient-centred objectives which we have interpreted as enabling the patient to experience a good death.