Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses
-
J Pediatr Oncol Nurs · Sep 2004
Review Case ReportsFacilitating care for childhood cancer survivors: integrating children's oncology group long-term follow-up guidelines and health links in clinical practice.
Childhood cancer survivors are a growing, vulnerable group with health care needs unique to their cancer treatments. They may experience many late physical and psychological complications (late effects) of treatment including organ dysfunction, infertility, second neoplasms, chronic hepatitis, musculoskeletal problems, alterations in cognitive function, and myriad psychosocial problems. ⋯ This article will use a case-study approach to demonstrate how the newly developed Children's Oncology Group Long-term Follow-up Guidelines and Health Links can be used in clinical practice to improve awareness about late effects and the importance of follow-up care for childhood cancer survivors. The Children's Oncology Group Guidelines and Health Links were created by a multidisciplinary team of health care experts and patient advocates to provide a systematic plan for pediatric cancer survivor follow-up care and health education across the cancer continuum.
-
J Pediatr Oncol Nurs · May 2004
ReviewPediatric cancer research from past successes through collaboration to future transdisciplinary research.
Multidisciplinary collaboration in therapeutic research in childhood cancer has been responsible for enormous improvements in outcomes. Many of the improvements have resulted from large clinical trials carried out in multisite settings through the Children's Oncology Group (COG) and its predecessors, the Children's Cancer Group, the Pediatric Oncology Group, the National Wilms' Tumor Study, and Intergroup Rhabdomyosarcoma Study Groups. ⋯ However more can be done to improve both survival rates and the quality of survival. Areas that can benefit from a transdisciplinary model of research are discussed, as well as challenges to this form of collaboration.
-
Approximately 2,200 children and adolescents die a cancer-related death each year in the United States; of these, almost 90% will die while experiencing 2 to 8 troubling symptoms. With improved symptom control and end-of-life care, these patients might suffer less before they die and their survivors might experience fewer or less intense adverse physical and mental conditions secondary to their bereavement. ⋯ Knowing the characteristics of cancer-related deaths in children and adolescents will help researchers and clinicians develop and test effective interventions related to symptom management, decision making, and availability of care delivery models that match the dying child's needs and preferences. Such interventions could also contribute to the highest quality and cost-effective care being provided to the bereaved survivors.
-
J Pediatr Oncol Nurs · Nov 2001
ReviewPost-dural puncture headache and other complications after lumbar puncture.
In pediatric hematology and oncology specialties, lumbar punctures are frequently performed for diagnostic and therapeutic purposes. Lumbar puncture is a procedure that is generally well tolerated with minimal adverse effects. However, adverse effects do occur. ⋯ This review discusses the general principles in the clinical presentation of adverse effects after lumbar puncture and offers interventions for management. The prevention and the recognition and treatment of adverse effects is the role of the entire health care team that cares for children who require lumbar puncture. As such, implications for the role of nursing are essential before, during, and after a lumbar puncture and are briefly discussed.
-
J Pediatr Oncol Nurs · Apr 1997
ReviewAn analysis of the concept of hope in the adolescent with cancer.
Nursing application of the concept of hope in the pediatric oncology clinical setting is currently in its infancy. This article presents a systematic analysis of the concept of hope for use by the pediatric oncology nurse in the care of the pediatric adolescent oncology patient. ⋯ This article defines critical attributes, antecedents, and consequences of hope; constructs case examples (a model, a borderline, and contrary cases); includes an operational definition of adolescent hopefulness; and summarizes empirical referents of hope. Through clinical assessment of hope in the pediatric adolescent oncology patient and ongoing research of hope in this population, evaluation of the potential benefits of hope to this population's adaptation to varying health states will be further demonstrated.