European journal of oncology nursing : the official journal of European Oncology Nursing Society
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Review
Research priorities in haemato-oncology nursing: results of a literature review and a Delphi study.
The study aimed to review the nursing haemato-oncology literature followed by a Delphi study to determine research priorities of UK nurses working in haemato-oncology. ⋯ Results show both similarities and differences to priorities identified in previous haemopoietic stem cell transplant and cancer nursing studies. Further exploration of priority areas is required but priorities identified in this study provide a good starting point for further exploration and development of research programmes.
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Review Comparative Study
Adolescents & young adults: issues in transition from active therapy into follow-up care.
The development of services focused on addressing the needs of Adolescent & Young Adult (AYA) cancer patients as they transition from active therapy into follow-up care is an area of growth, development and research across the globe. This is important as much of the empirical literature and service development to date has focused on children or older adults. In Victoria, Australia, as elsewhere, survivorship studies focusing on the AYA age group are needed to answer questions regarding their medical, psychological and social needs. This article examines the qualitative exploration of the findings of a small focus group study with young people and the subsequent development of a practice framework by the onTrac@PeterMac Victorian Adolescent & Young Adult Cancer Service. ⋯ The research findings supported the development of a practice framework designed to assist in the management of AYA living with cancer in Victoria. Results also supported previously documented evidence that indicate gaps in cancer knowledge and services provided to this age group. Further collaborative research is required to understand AYA treatment and survivorship issues to assist in the development of more formalised aged appropriate protocols.
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Review
Policy and practice in teenage and young adult cancer care in England: looking to the future.
This paper outlines the current policy and service developments for the provision of cancer care for teenagers, young adults and their families in England. Key implications in terms of the settings and place of care, the centrality of the multidisciplinary team, the improvement of outcomes in TYA cancer care together with psychosocial issues are examined in more depth alongside the existing evidence base. In terms of the development of high quality, accessible specialist TYA cancer care and the development of a rigorous evidence base for the practice of TYA cancer care the next few years are crucial. The way forward is complex and challenging but the framework is in place in England to comprehensively improve the care and outcomes of teenagers and young adults with cancer.
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The lifespan of people with an intellectual disability has increased significantly in recent years; however, this has resulted in a rising incidence of age-related illnesses including cancer. The World Health Organisation has expressed concern as evidence suggests prevalence rates for cancer are increasing for this group. The needs of people with a cancer diagnosis and an intellectual disability are beginning to be highlighted; however, there appears to be a substantial dearth of services including appropriate cancer information. ⋯ Cancer professionals should assess the unique information needs of people with an intellectual disability as mainstream information does not meet their requirements. Furthermore, health professionals working in intellectual disability settings must also address their knowledge and information deficits in this regard. This paper presents a review of the literature with a specific focus on the cancer information needs of people with an intellectual disability.
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It is widely documented that nurses experience work-related stress [Quine, L., 1998. Effects of stress in an NHS trust: a study. Nursing Standard 13 (3), 36-41; Charnley, E., 1999. ⋯ Vicarious traumatisation: do we adequately support traumatised staff? The Journal of Cognitive Rehabilitation 24-25] suggests that vicarious traumatisation is a broad term used for workers from any profession, it has not yet been empirically determined if oncology nurses experience vicarious traumatisation. This purpose of this paper is to introduce the concept of vicarious traumatisation and argue that it should be explored in oncology nursing. The review will highlight that empirical research in vicarious traumatisation is largely limited to the mental health professions, with a strong recommendation for the need to empirically determine whether this concept exists in oncology nursing.