Articles: caregivers.
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Ann Acad Med Singap · Aug 2024
Meta AnalysisQuality of life of family caregivers of children and young adults with Down syndrome: A systematic review and meta-analysis.
The aims of this systematic review and meta-analysis are to synthesise quality of life (QOL) of family caregivers of children and young adults with Down syndrome (DS) and determine factors affecting their QOL. ⋯ QOL of caregivers of children with DS was lower than population reference data. Understand-ing the factors that influence family caregivers' QOL is an essential step towards improving the QOL of caregivers and their children with DS.
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Ann Acad Med Singap · Aug 2024
Meta AnalysisQuality of life of children and young adults with Down syndrome from caregivers' perspective: A systematic review and meta-analysis.
Down syndrome (DS) negatively impacts the well-being of affected individuals. This study aimed to summarise the evidence on quality of life (QOL) of children and young adults with DS using quantitative measures from caregivers' perspective and identify factors that affected their QOL. ⋯ Children with DS have lower caregiver-reported QOL than TD children, especially in social functioning and school functioning subdomains.
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Randomized Controlled Trial
Families' Perspectives on Social Services Navigation After Pediatric Urgent Care.
Interest is growing in clinic-based programs that screen for and intervene on patients' social risk factors, including housing, food, and transportation. Though several studies suggest these programs can positively impact health, few examine the mechanisms underlying these effects. This study explores pathways through which identifying and intervening on social risks can impact families' health. ⋯ Social care programs may impact health through multiple potential pathways. Program impacts seem to be mediated by the extent to which programs increase knowledge of and access to social and health care services and support positive relationships between families and program personnel.
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The Family Caregiver Medication Administration Hassles Scale (FCMAHS) was developed to evaluate the hassles and concerns experienced by family caregivers in medication administration. ⋯ The FCMAHS-TR can be used to evaluate the hassle and concerns experienced by family caregivers in medication administration. This scale can be used by healthcare professionals to identify family caregivers who need individualized interventions for medication administration hassles.