Articles: caregivers.
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Palliative medicine · Oct 2022
Evaluating a partnership model of hospice enabled dementia care: A three-phased monitoring, focus group and interview study.
People with dementia and their caregivers often lack equitable access to hospice care which is a concern internationally. Domains of best practice in palliative care for this population exist and hospices are urged to become dementia friendly. ⋯ Positive outcomes resulted from this best practice model; achievement of preferred place of care and death at home, dual benefits of therapies for patients and families and partnership in cross working and learning between services. Replication of this model should be considered internationally.
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Palliative medicine · Oct 2022
A feasibility study of a decision aid to support family carers of people with severe dementia or those towards the end-of-life.
Advance care planning in dementia does not always happen. As dementia progresses, decisions are often left for family carers to make with professionals. ⋯ We met the success criteria demonstrating this study was feasible and acceptable to carers. Future research should test the effectiveness of the decision aid in a full scale evaluation.
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During the COVID-19 pandemic, hospitals did not allow caregiver visitation. Little is known about how caregivers' absence affected patients' care. ⋯ Hospital visitor restrictions significantly reduced caregivers' communication with patients' medical team, causing caregivers and patients emotional distress. Protocols that facilitate communication between caregivers and care teams may benefit caregivers who cannot be physically present at care facilities, including distance caregivers.
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Pediatric emergency care · Oct 2022
Nonurgent Emergency Department Use by Pediatric Patients in the United States: A Systematic Literature Review.
Pediatric use of the emergency department (ED) for nonurgent reasons is common in the United States. Patients with nonurgent conditions can receive more appropriate, cost-efficient care in other settings. We conducted a systematic literature review to understand the breadth of factors that contribute to use of the ED for nonurgent conditions by pediatric patients in the United States. ⋯ The findings of this review suggest tailored interventions to address parents'/caregivers' ED perceptions and health literacy in addition to access (ie, public policy).