Articles: caregivers.
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The Hospice journal · Jan 2000
The role of primary caregiver denial in inpatient placement during home hospice care.
This study conducted with a sample of 68 home hospice patients revealed that primary caregivers in denial of the patient's terminality were more likely to place hospice patients in inpatient treatment. Moreover, patients placed in inpatient settings were more likely to die there, rather than at home as planned. These findings suggest an impact of primary caregiver denial upon patient self-determination, and indicate the importance of addressing denial in counseling with primary caregivers of terminally ill patients.
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Little peer-reviewed literature exists regarding the actions of the person who recognized and called 911 at the time of an out-of-hospital cardiac arrest (OHCA). ⋯ Lay responder demographics are similar to those of patients. In this study, an LR call to 911 first appears to be associated with improved OHCA survival. The LR estimates of delay to 911 call were not associated with increased mortality. The authors identified no patient or witness characteristics that were associated with a delay to calling 911 first.
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Carers of people with dementia themselves have to endure heavy physical and emotional burdens. This article examines the government's new strategy Caring About Carers (DoH 1999).
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There is strong consensus that caring for an elderly individual with disability is burdensome and stressful to many family members and contributes to psychiatric morbidity. Researchers have also suggested that the combination of loss, prolonged distress, the physical demands of caregiving, and biological vulnerabilities of older caregivers may compromise their physiological functioning and increase their risk for physical health problems, leading to increased mortality. ⋯ Our study suggests that being a caregiver who is experiencing mental or emotional strain is an independent risk factor for mortality among elderly spousal caregivers. Caregivers who report strain associated with caregiving are more likely to die than noncaregiving controls.
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Comparative Study
[Perception of symptom distress in lung cancer patients: I. Agreement between patients and their caregiving relatives].
This paper employs a comparative descriptive design to compare primary family caregivers' assessment of lung cancer patients' symptom distress with patients' own perceptions of symptom distress in the home setting. The second part describes the results of the qualitative component of this research. ⋯ No significant differences in ratings were found for 10 of the 13 symptoms assessed. Therefore, when the patient is unable to provide a self-report of symptom distress, health-care professionals may seriously consider family caregivers' assessments of patients' symptom distress to be reasonable estimates for at least 10 of the 13 symptoms on the SDS.