• Clinical rehabilitation · Aug 2016

    Randomized Controlled Trial Multicenter Study

    A cluster randomized controlled trial of a client-centred, activities of daily living intervention for people with stroke: one year follow-up of caregivers.

    • Ann-Sofie Bertilsson, Gunilla Eriksson, Lisa Ekstam, Kerstin Tham, Magnus Andersson, Lena von Koch, and Ulla Johansson.
    • Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden ann-sofie.bertilsson@ki.se.
    • Clin Rehabil. 2016 Aug 1; 30 (8): 765-75.

    ObjectiveCompare caregiver burden, provision of informal care, participation in everyday occupations and life satisfaction of caregivers to people with stroke, who either had received a client-centred, activities of daily living intervention or usual activities of daily living interventions.DesignA multicentre cluster randomized controlled trial in which 16 rehabilitation units were randomly assigned to deliver a client-centred, activities of daily living intervention or usual activities of daily living interventions. Caregiver outcomes were compared cross-sectionally at 12 months and changes in outcomes between three and 12 months after people with stroke were included in the study.SettingInpatient and outpatient rehabilitation.ParticipantsCaregivers of people with stroke enrolled in the trial.InterventionA client-centred, activities of daily living intervention aiming to increase agency in daily activities and participation in everyday life for people after stroke.Main MeasuresCaregiver Burden Scale, Occupational Gaps Questionnaire, LiSat-11.ResultsThere were no differences in outcomes between caregivers in the client-centred, activities of daily living (n = 88) and the usual activities of daily living (n = 95) group at 12 months. The caregiver burden score was 42.7 vs. 41.8, p = 0.75, mean occupational gaps were 3.5 vs. 4.0, p = 0.52 and satisfaction with life was 53% vs. 50%, p = 0.87. There were no differences in changes between three and 12 months. However, within groups there were significant differences in caregiver burden, factor general strain, for caregivers in the client-centred, activities of daily living group, and in provision of informal care for the usual activities of daily living group.ConclusionThe client-centred intervention did not bring about any difference between caregiver-groups, but within groups some difference was found for caregiver burden and informal care.© The Author(s) 2015.

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