• Jessica Drinkwater, Anne MacFarlane, Maureen Twiddy, David Meads, Ruth H Chadwick, Ailsa Donnelly, Phil Gleeson, Nick Hayward, Michael Kelly, Robina Mir, Graham Prestwich, Martin Rathfelder, and Robbie Foy.
• Centre for Primary Care and Health Services Research, University of Manchester, Manchester, and honorary research fellow, Leeds Institute of Health Sciences, University of Leeds, Leeds, UK.
• Br J Gen Pract. 2024 Apr 4.

BackgroundHealth policy promotes patient participation in decision making about service organisation. In English general practice this happens through contractually required patient participation groups (PPGs). However, there are problems with the enactment of PPGs that have not been systematically addressed.AimTo observe how a co-designed theory-informed intervention can increase representational legitimacy and facilitate power sharing to support PPGs to influence decision making about general practice service improvement.Design And SettingParticipatory action research to implement the intervention in two general practices in the North of England was undertaken. The intervention combined two different participatory practices: partnership working involving externally facilitated meetings with PPG members and staff; and consultation with the wider patient population using a bespoke discrete choice experiment (DCE).MethodTo illustrate decision making in PPGs, qualitative data are presented from participant observation notes and photographed visual data generated through participatory methods. The DCE results are summarised to illustrate how wider population priorities contributed to overall decision making. Observational data were thematically analysed using normalisation process theory with support from a multi-stakeholder co-research group.ResultsIn both general practices, patients influenced decision making during PPG meetings and through the DCE, resulting in bespoke patient-centred action plans for service improvement. Power asymmetries were addressed through participatory methods, clarification of PPG roles in decision making, and addressing representational legitimacy through wider survey consultation.ConclusionCombining participatory practices and facilitated participatory methods enabled patients to influence decision making about general practice service improvement. The policy of mandatory PPGs needs updating to recognise the need to resource participation in a meaningful way.© The Authors.

4 keywords...

hide…