• Molly Megson, Andrea Hilton, Myriam DellOlio, and Joanne Reeve.
• University of Hull.
• Br J Gen Pract. 2024 Jun 20; 74 (suppl 1).

BackgroundThe principle of epistemic justice (EJ) recognises the need for a person's voice to be both heard (testimonial) and understood (hermeneutic) in the generation of meaning. Funding bodies now require all research to have embedded patient and public involvement (PPI) - an active partnership between patients, carers, and the public with researchers, which influences and shapes research.AimCurrent PPI initiatives potentially enable testimonial justice - ensuring voices are heard. But do they adequately support hermeneutical justice?MethodFirst, a scoping review of published PPI guidance was carried out to describe a current best-practice framework. The framework was then critically reviewed using key concepts described by an EJ understanding of optimising healthcare research for marginalised groups, to consider the potential role of current PPI guidance in supporting epistemically just health research.ResultsAnalysis is ongoing, but the study's findings describe whether and how current PPI guidelines support and enable the voice of marginalised patient groups to not only be included in research but also to have meaningful impact, including what factors enable and disable tailored care.ConclusionThis study suggests ways in which current PPI methods can be used to best advantage. The authors' ongoing research is discussed to understand further how EJ concepts might help shape the future of PPI in health research.© British Journal of General Practice 2024.

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