• Burns · Dec 2024

    Electronic and paper delivery of parent proxy and children's report of two scar-specific patient-reported outcome measures (Brisbane Burn Scar Impact Profile and Patient and Observer Scar Assessment Scale): An equivalence study.

    • Brandon Meikle, Megan Simons, Jill Meirte, Kate Miller, Roy Kimble, and Zephanie Tyack.
    • Centre for Children's Burns and Trauma Research, Queensland Children's Hospital, Brisbane, Queensland, Australia; Children's Health Research Centre, The University of Queensland, Faculty of Medicine, Herston, Queensland, Australia. Electronic address: brandon.meikle@uq.net.au.
    • Burns. 2024 Dec 18; 51 (2): 107359107359.

    IntroductionThe Brisbane Burn Scar Impact Profile (BBSIP) and the Patient and Observer Scar Assessment Scale (POSAS) are used in burn scar assessment to quantify patient health-related quality of life (HR-QoL). These questionnaires were developed using pen-and-paper delivery methods; however, there is a push towards electronic delivery of these questionnaires in both clinical practice and research. Equivalence testing is required to ensure that validity of these paper questionnaires is maintained electronically.MethodsParticipants were presented with a survey containing the BBSIP and POSAS, which was completed twice during a single outpatient appointment using either pen-and-paper or a tablet. Completion order was randomised to: 1) paper-paper; 2) paper-tablet; 3) tablet-paper; and 4) tablet-tablet. Comparison of intraclass correlation coefficients (ICCs), calculated for each BBSIP and POSAS subscale, was conducted with the ICC of the paper-paper group.ResultsParticipants (n = 104) included 55 caregiver proxies of children aged 8 years or less, 26 caregiver proxies of children aged 8-18 years, and 23 children aged 8-18 years. The majority but not all BBSIP (61 %) and POSAS (81 %) subscales were equivalent. The acceptability of electronic delivery was supported.ConclusionFindings generally support electronic delivery of the BBSIP and POSAS, likely supporting their use in outpatient clinics, telehealth clinics, and remote monitoring. Additional testing is required for subscales that did not demonstrate equivalence.Copyright © 2024 The Authors. Published by Elsevier Ltd.. All rights reserved.

      Pubmed     Copy Citation     Plaintext  

      Add institutional full text...

    Notes

     
    Knowledge, pearl, summary or comment to share?
    300 characters remaining
    help        
    You can also include formatting, links, images and footnotes in your notes
    • Simple formatting can be added to notes, such as *italics*, _underline_ or **bold**.
    • Superscript can be denoted by <sup>text</sup> and subscript <sub>text</sub>.
    • Numbered or bulleted lists can be created using either numbered lines 1. 2. 3., hyphens - or asterisks *.
    • Links can be included with: [my link to pubmed](http://pubmed.com)
    • Images can be included with: ![alt text](https://bestmedicaljournal.com/study_graph.jpg "Image Title Text")
    • For footnotes use [^1](This is a footnote.) inline.
    • Or use an inline reference [^1] to refer to a longer footnote elseweher in the document [^1]: This is a long footnote..

    hide…