• Chronic illness · Mar 2010

    Informal and formal care infrastructure and perceived need for caregiver training for frail US veterans referred to home and community-based services.

    • Courtney Harold Van Houtven, Eugene Z Oddone, and Morris Weinberger.
    • Center of Excellence in Health Services Research and Development in Primary Care, Veterans Administration, Durham VAMC, Durham, NC 27705, USA. courtney.vanhoutven@duke.edu
    • Chronic Illn. 2010 Mar 1; 6 (1): 57-66.

    ObjectivesTo describe the informal care network of US veterans referred to home and community-based services (Homemaker Home Health services, H/HHA, or Home-Based Primary Care, HBPC) at the Durham Veterans Affairs Medical Center (VAMC), including: quantity and types of tasks provided and desired content for caregiver training programs.MethodsAll primary care patients referred to H/HHA or HBPC during the preceding 3 months were sent questionnaires in May 2007. Additionally, caregivers were sent questionnaires if a patient gave permission. Descriptive statistics and chi-squared tests were performed.ResultsOn average, patients received 5.6 hours of VA care and 47 hours of informal care per week. 26% of patients (38% of patients with caregiver proxy respondents) and 59% of caregivers indicated the caregiver would be interested in participating in a training program by phone or on-site. Significant barriers to participation existed. The most common barriers were: transportation; no time due to caregiving or work demands; caregiver's own health limitations; and no need.ConclusionsCaregiver training needs to be tailored to overcome barriers to participate. Overcoming these barriers may be possible through in-home phone or internet training outside traditional business hours, and by tailoring training to accommodate limiting health problems among caregivers.

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