• Health Expect · Sep 2004

    What does it mean to involve consumers successfully in NHS research? A consensus study.

    • Rosemary Telford, Jonathan D Boote, and Cindy L Cooper.
    • Sheffield Care Trust, University of Sheffield, Sheffield, UK. r.telford@sheffield.ac.uk
    • Health Expect. 2004 Sep 1; 7 (3): 209-20.

    ObjectiveTo obtain consensus on the principles and indicators of successful consumer involvement in NHS research.DesignConsensus methods were used. An expert workshop, employing the nominal group technique was used to generate potential principles and indicators. A two-round postal Delphi process was used to obtain consensus on the principles and indicators.Setting And ParticipantsParticipants were drawn from health, social care, universities and consumer organizations. A purposive sampling strategy was used to identify people who had experience and/or knowledge of consumer involvement in NHS research. Six researchers and seven consumers participated in an expert workshop. Ninety-six people completed both rounds of the Delphi process.Main Outcome MeasuresConsensus on principles and indicators of successful consumer involvement in NHS research.ResultsEight principles were developed through an expert workshop and Delphi process, and rated as both clear and valid. Consensus was reached on at least one clear and valid indicator by which to measure each principle.ConclusionsConsensus has been obtained on eight principles of successful consumer involvement in NHS research. They may help commissioners, researchers and consumers to deepen their understanding of this issue, and can be used to guide good practice.

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