Journal of pain and symptom management
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J Pain Symptom Manage · Jan 2025
ReviewEfficacy of Traditional, Complementary, and Integrative Medicine in Pain and Psychological Distress Management for Pediatric Palliative Patients: A Systematic Review and Meta-Analysis of Randomized Controlled Trials.
Traditional, complementary, and integrative medicine (TCIM) is being increasingly used to manage symptoms in patients with palliative needs. However, there is a lack of evidence to guide its use in the pediatric palliative care (PPC) setting. ⋯ Existing evidence supports the therapeutic benefits of music therapy, massage, and hypnosis on relieving pain and anxiety symptoms in the PPC setting, though the evidence is of low-to-moderate quality.
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J Pain Symptom Manage · Jan 2025
Association of Palliative Care Timing with End-of-Life Quality in Children with Heart Disease.
Children with heart disease are at risk for early mortality and parents often perceive suffering at end-of-life (EOL). Involvement of pediatric palliative care (PPC) is a proposed quality measure at the EOL in children with cancer, and early PPC involvement is associated with other quality measures. The impact of early PPC involvement on EOL quality is unknown in children with heart disease. ⋯ Our findings may indicate that quality indicators extrapolated from pediatric oncology do not apply to children with heart disease, as they have notably different disease trajectories and intervention options. We recommend defining high-quality EOL care indicators for children with heart disease as a priority.
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J Pain Symptom Manage · Jan 2025
Implementation of Ambulatory Kidney Supportive Care in a Safety Net Hospital.
Chronic kidney disease (CKD) disproportionately impacts lower socioeconomic groups and is associated with many symptoms and complex decisions. Integration of Kidney Supportive Care (KSC) with CKD care can address these needs. To our knowledge, this approach has not been described in an underserved population. ⋯ We describe a feasible ambulatory care model of KSC in a safety net setting that can serve as a framework for the development of other non-cancer palliative care ambulatory clinics. Future work will optimize our model.
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J Pain Symptom Manage · Jan 2025
Preparing Surrogates for Decision-Making: Development and Pilot Testing of PREPARE For THEIR Care.
Surrogate decision-makers have expressed the need for better preparation around communication and medical decision-making. ⋯ In this pilot study, the PREPARE For THEIR Care program resulted in high user satisfaction and improved pre-to-post surrogate readiness to engage in ACP. Larger trials are needed to evaluate the impact of the program on surrogate readiness and confidence.