Journal of pain and symptom management
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J Pain Symptom Manage · Feb 2013
Lack of energy: an important and distinct component of HIV-related fatigue and daytime function.
Fatigue is a prevalent symptom among adults living with HIV. There is increasing evidence that fatigue and energy are related, yet distinct constructs. Although HIV-related fatigue has been well studied, little is known about perceived energy and how it relates to fatigue, individual characteristics, and other symptoms. ⋯ Lack of energy interferes with daytime function and is not just the inverse of fatigue but a distinct perception that differs from fatigue.
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J Pain Symptom Manage · Feb 2013
Advance care planning and dying in nursing homes in Flanders, Belgium: a nationwide survey.
In Belgium, data on actual advance care planning (ACP) in nursing homes (NHs) are scarce. ⋯ Prevalence of ACPs and formal authorization of a legal representative was low among the deceased NH residents in Flanders, Belgium. There was a higher prevalence of physicians' orders, often established after the resident had lost capacity. Initiatives should be developed to stimulate more advance discussion on care options and making end-of-life decision with the residents while they retain capacity.
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J Pain Symptom Manage · Feb 2013
Direct observation of prognosis communication in palliative care: a descriptive study.
Palliative care (PC) consultations result in improved patient understanding of prognosis and better quality of life, yet the content and processes of prognosis communication during PC consultations remain unknown. ⋯ Prognoses are routinely communicated in PC consultations with hospitalized patients and their families. The rate and characteristics of prognosis communication differ based on the length of time the patient is expected to live.
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J Pain Symptom Manage · Feb 2013
Nurse executives' perceptions of end-of-life care provided in hospitals.
With the aging of our population, almost one in five adults, or 19% of the population, will be older than 65 years by 2030. Many persons have expressed concern about the inadequate preparation of hospitals to provide high-value end-of-life care for the current and anticipated population of older adults. ⋯ These findings highlight the need for interventions that focus on improving communication at the bedside and in transitions of care, enhancing educational interventions, and developing patient-centered care systems, which translate into a higher quality end-of-life experience for patients and their family members. Nurse executives are currently an underused resource in end-of-life care but are poised to be able to champion innovative models and a culture of change that integrates high-value care for patients with serious and chronic illnesses.