Journal of pain and symptom management
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J Pain Symptom Manage · Nov 2014
Case ReportsEthical considerations in the management of analgesia in terminally ill pediatric patients.
Research has demonstrated the significant symptom burden present at the end of life of terminally ill children. Medicine has always viewed the relief of pain and suffering as a fundamental human right and a moral and ethical obligation. At the end of life, pain and dyspnea are symptoms commonly experienced by both adults and children. ⋯ We describe a case in which parents prevent a young patient from receiving adequate pain management during the course of a terminal illness. We discuss the importance of recognizing the barriers to opioid use and the ethical ramifications of failing to find common ground with the family. We highlight parental responsibilities and limitations of parental authority in decision making for their child.
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J Pain Symptom Manage · Nov 2014
Observational StudySymptom experience and quality of life in pediatric brain tumor survivors: a cross-sectional study.
Little is known about the symptom experience and quality of life of children and youths who have completed treatment for a pediatric brain tumor. ⋯ Pediatric brain tumor survivors experience many symptoms after treatment. Care providers should be particularly diligent screening for symptoms, including pain, headaches, lack of energy, and sleep problems, as these symptoms may be particularly distressing for children.