Journal of pain and symptom management
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J Pain Symptom Manage · Mar 2016
Comparative StudyDoes Mode of Survey Administration Matter? Using Measurement Invariance to Validate the Mail and Telephone Versions of the Bereaved Family Survey.
The Veterans Health Administration evaluates outcomes of end-of-life (EOL) care using the Bereaved Family Survey (BFS). Originally, the BFS was administered as a telephone survey but was transitioned to a mail survey beginning October 2012. The transition necessitated an evaluation of the tool's validity using this new mode of administration. ⋯ These findings demonstrate the MI and robust psychometric properties for the BFS across administration modes.
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J Pain Symptom Manage · Mar 2016
Development and Evaluation of the Psychometric Properties of the CKD-MBD Knowledge and Behavior Questionnaire (CKD-MBD-KB) for Patients with Chronic Kidney Disease.
Chronic kidney disease-mineral and bone disorder (CKD-MBD) is one of the most complicated morbidities among patients with end-stage renal disease. At present, a specific questionnaire assessing relevant knowledge and behavior for patients with CKD-MBD is still unavailable. ⋯ This CKD-MBD-KB questionnaire has been confirmed to have adequate psychometric properties (good reliability and validity) and may be useful in the assessment of patient-related knowledge, intervention programs, and treatment protocols.
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J Pain Symptom Manage · Mar 2016
Multicenter Study Comparative StudySymptom Clusters from Dialysis to Renal Transplantation: A Five-Year Longitudinal Study.
Patients on dialysis experience multiple concurrent and often related symptoms defined as symptom clusters. Renal transplantation (RTX) is thought to reduce symptom experience and improve health-related quality of life. No longitudinal study has assessed symptoms and symptom clusters in patients in the transition from dialysis to RTX. ⋯ Although symptoms and symptom clusters were reduced after RTX, the clinical relevance of the reductions was ambiguous. Symptom clusters could not be generated after RTX, suggesting that use of the KDQOL-SF may not be optimal to assess symptoms in RTX patients.
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J Pain Symptom Manage · Mar 2016
Multicenter StudySpanish Validation of the Care Evaluation Scale for Measuring the Quality of Structure and Process of Palliative Care from the Family Perspective.
A reliable and valid measure of the structure and process of end-of-life care is important for improving the outcomes of care. ⋯ The Spanish CES was found to be a reliable and valid measure of the satisfaction with end-of-life care structure and process from family members' perspectives.
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J Pain Symptom Manage · Mar 2016
Observational StudyPatient-Controlled Therapy (PCT) of Breathlessness in Palliative Care: A New Therapeutic Concept for Opioid Application?
Breathlessness is one of the most distressing symptoms experienced by patients with advanced cancer and noncancer diagnoses alike. Often, severity of breathlessness increases quickly, calling for rapid symptom control. Oral, buccal, and parenteral routes of provider-controlled drug administration have been described. It is unclear whether patient-controlled therapy (PCT) systems would be an additional treatment option. ⋯ Opioid PCT is a feasible and acceptable therapeutic method to reduce refractory breathlessness in palliative care patients.