Journal of pain and symptom management
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J Pain Symptom Manage · Jul 2020
Spiritual Distress Manifested in a Teenager Following a Stem Cell Transplant.
A mother and nurse 20 years after her son's tragic death, after a high-risk stem cell transplant, learns that his major behavioral changes while in strict isolation came under the term of spiritual distress. Through her personal experience, the writer describes how her son's thoughts and feelings were expressed in behaviors, atypical for his usual demeanor. This article highlights the importance and value of healthcare providers listening to a parent's perceptions of their child's state of mind. Atypical behavior could be a manifestation of spiritual distress and requires further assessment from the health care team.
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J Pain Symptom Manage · Jul 2020
Rapid De-Escalation and Triaging Patients in Community-Based Palliative Care.
The coronavirus disease 2019 (COVID-19) pandemic created a rapid and unprecedented shift in our medical system. Medical providers, teams, and organizations have needed to shift their visits away from face-to-face visits and toward telehealth (both by phone and through video). Palliative care teams who practice in the community setting are faced with a difficult task: How do we actively triage the most urgent visits while keeping our vulnerable patients safe from the pandemic? ⋯ We recommend active triaging, communication, and frequent screening for COVID-19 symptoms for palliative care patients been evaluated in the community setting. An understanding of infection risk, mutual consent between designated providers, patients, and their families are crucial to maintaining safety while delivering community-based palliative care during the COVID-19 pandemic.
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J Pain Symptom Manage · Jul 2020
Cross-cultural Adaptation and Psychometric Validation of the French Version of the FAMCARE-Patient Questionnaire (FFP-16) for Outpatients with Advanced-stage Cancer.
Satisfaction is known to be correlated with the quality of care; it indicates the adequacy of the caregivers' responses in meeting the needs and expectations of patients. The FAMCARE-Patient questionnaire has been used to quantify satisfaction level in outpatients with advanced-stage cancers. ⋯ We found the FFP-16 questionnaire to be a reliable and valid instrument for the assessment of satisfaction in French outpatients with advanced-stage cancer.
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J Pain Symptom Manage · Jul 2020
Creating a Palliative Care Inpatient Response Plan for COVID19 - The UW Medicine Experience.
The coronavirus disease 2019 (COVID-19) pandemic is stressing health care systems throughout the world. Significant numbers of patients are being admitted to the hospital with severe illness, often in the setting of advanced age and underlying comorbidities. Therefore, palliative care is an important part of the response to this pandemic. The Seattle area and UW Medicine have been on the forefront of the pandemic in the U.S. ⋯ Strategy planning for delivery of high-quality palliative care in the context of the COVID-19 pandemic represents an important area of need for our health care systems. We share our experiences of developing such a strategy to help other institutions conduct and adapt such strategies more quickly.
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J Pain Symptom Manage · Jul 2020
Rapid Implementation of Inpatient Telepalliative Medicine Consultations during COVID-19 Pandemic.
As coronavirus disease 2019 cases increase throughout the country and health care systems grapple with the need to decrease provider exposure and minimize personal protective equipment use while maintaining high-quality patient care, our specialty is called on to consider new methods of delivering inpatient palliative care (PC). Telepalliative medicine has been used to great effect in outpatient and home-based PC but has had fewer applications in the inpatient setting. As we plan for decreased provider availability because of quarantine and redeployment and seek to reach increasingly isolated hospitalized patients in the face of coronavirus disease 2019, the need for telepalliative medicine in the inpatient setting is now clear. We describe our rapid and ongoing implementation of telepalliative medicine consultation for our inpatient PC teams and discuss lessons learned and recommendations for programs considering similar care models.