Journal of pain and symptom management
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J Pain Symptom Manage · Dec 2024
A Photo-Narrative Intervention for Children with Severe Neurological Impairment in the PICU.
Parents of children with severe neurological impairment (SNI) face barriers in the pediatric intensive care unit (PICU) to humanistic care. Photo-narratives are a promising strategy to share perspectives about well-being. ⋯ Themes and lessons learned from the successful adaptation and refinement of a photo-narrative can inform other interventions designed to humanize care.
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J Pain Symptom Manage · Dec 2024
Utilization of Palliative Radiation in Pediatric Oncology Patients During the End-of-life (EOL).
Suffering at the end-of-life (EOL) can impact the perception of a "good death" and ultimately affect bereavement for families of children with cancer. Palliative radiation (pXRT) is a tool that can address pain, mitigate suffering and improve quality of life. ⋯ There is underutilization and significant variability in the use of pXRT during EOL in pediatric oncology. Barriers to this tool may include physician perceptions, family/patient preferences, and logistical hardships. Guidelines to standardize pXRT, alongside earlier PPC integration, may guide clinician decision making and increase pXRT utilization.