Journal of pain and symptom management
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J Pain Symptom Manage · Apr 2024
Economic Hardship at the End of Life for Families of Children with Complex Chronic Conditions.
Many children with complex chronic medical conditions (CCC), though living longer, die prematurely. Little is known about family economic hardship during end of life (EOL), nor associated differences in patterns of care. ⋯ Economic burden on families of children with CCC correlates with higher health care utilization demonstrating the need for ameliorative resources and preventative measures.
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J Pain Symptom Manage · Apr 2024
Exploration of patient and clinician experience of video consultations in community palliative care.
Telehealth video consultations (VCs) were implemented in the community palliative care team (CPCT) in a regional NSW health district, Australia, as a response to restrictions to the COVID-19 pandemic, using patient's device in the absence of a clinician. ⋯ Users in this study perceived VCs to have a place in CPC consultations. Using patient device enabled patient freedom, improved timeliness of clinical assessment, and communication to complement face-to-face consults, while minimizing infection risk. Unexpected, but valuable benefits were revealed. Workable technology is paramount.
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J Pain Symptom Manage · Apr 2024
Influence of Income and Education on Palliative Care in Acute Myeloid Leukemia Using the NCDB.
Palliative care is integral to symptom management, and we examined its relationship with income, education, and Medicaid expansion in acute myeloid leukemia. This was a retrospective cross-sectional study using the National Cancer Database that included patients with acute myeloid and monocytic leukemias > 18 years of age treated at Commission on Cancer facilities from 2004 to 2016. Univariate and multivariate models were adjusted for demographic variables and facility characteristics. ⋯ Residence in states with Medicaid expansion (January 2014 onward) had greater palliative care utilization. Palliative care use was associated with higher education but underutilized with higher incomes. Increased access with Medicaid expansion suggests the importance of public insurance.
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J Pain Symptom Manage · Apr 2024
Piloting a Patient Tool to Aid Palliative Care Referrals during Advanced Lung Cancer Treatment.
Patient misperceptions are a strong barrier to early palliative care discussions and referrals during advanced lung cancer treatment. ⋯ The palliative care education and screening tool is acceptable to patients and may address misperceptions and motivate palliative care discussions during treatment.
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J Pain Symptom Manage · Apr 2024
Lifelong Learning Indicators in Medical Students After a Novel Communication Skills Session.
A growth mindset and mastery approach have gained attention as useful learning orientations in medical education, however few studies of interventions to foster these orientations exist. ⋯ A novel communication skills session on delivering serious news fostered a communication growth mindset in third year medical students. Most students exhibited a mastery approach to learning; this approach was more likely when they had a growth mindset.