Journal of pain and symptom management
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J Pain Symptom Manage · Mar 2025
Clinician Perspectives Highlight the Need for Early Dyadic Coping Skills for People Living with Amyotrophic Lateral Sclerosis.
A diagnosis of ALS can be challenging, and many people find ways to adapt. At the same time, emotional distress can arise early after an ALS diagnosis even when high quality multidisciplinary care is provided. When emotional distress occurs, it can become chronic over time, and can affect both the person living with ALS and their care-partner (together called a dyad). ⋯ RT-ALS program content and structure is acceptable to clinicians. It is imperative to next seek further input from dyads about whether this type of program would be of interest and if yes, to pilot and refine the program for feasibility testing and then efficacy.
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J Pain Symptom Manage · Mar 2025
Navigating Uncertainty during Family Meetings in the Pediatric Cardiac Intensive Care Unit: A Qualitative Investigation of Team Communication and Family Engagement.
Uncertainty is a known barrier to effective communication during family meetings in the pediatric cardiac intensive care unit (CICU), however, limited data has characterized patterns of communication during these meetings, limiting our ability to make best practice recommendations to clinicians. ⋯ Our results encourage clinicians to communicate uncertainty in an unburied and explicit manner, which may reduce the burden on families to engage in effective communication strategies, such as clarifying and summarizing opaquely stated information.
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J Pain Symptom Manage · Mar 2025
Large language models to identify advance care planning in patients with advanced cancer.
Efficiently tracking Advance Care Planning (ACP) documentation in electronic heath records (EHRs) is essential for quality improvement and research efforts. The use of large language models (LLMs) offers a novel approach to this task. ⋯ LLMs can capture ACP domains from EHRs, with sensitivity exceeding NLP methods for complex domains such as goals of care. Future studies should explore approaches for scaling this methodology.
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J Pain Symptom Manage · Mar 2025
LetterThe Benefits of Virtual Reality Travel on Symptom Burden and Mental Health of Hemodialysis Patients.
Hemodialysis (HD) patients often face a heavy symptom burden, low subjective well-being, and high perceived stress. Traditional nonpharmacological interventions have limited effectiveness in improving this situation. Virtual reality (VR) technology, as an emerging approach, has shown significant advantages in alleviating symptom burden and enhancing mental health. ⋯ [www.chictr.org.cn], identifier [ChiCTR2400082781].
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I will never shake the memory of one of the first patients I worked with during clinical rotations. I was excited to begin my internal medicine rotation in my third year, marking my initiation into the world of inpatient care. On my first day, the residents on my team introduced themselves and discussed which patients would provide the best learning opportunities for students. That's how I ended up caring for John Doe.