Journal of pain and symptom management
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J Pain Symptom Manage · Sep 2019
Randomized Controlled TrialTo what extent do the NRS and CRQ capture change in patients' experience of breathlessness in advanced disease? Findings from a mixed-methods double blind randomised feasibility trial.
Chronic or refractory breathlessness is common and distressing. To evaluate new treatments, outcome measures that capture change in patients' experience are needed. ⋯ This study found that the NRS using the question "How bad has your breathlessness felt at its worst over the past 24 hours?" captured change across multiple domains, and therefore may be an appropriate primary outcome measure in trials in this population. Future work should confirm the construct validity of this question.
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J Pain Symptom Manage · Sep 2019
Randomized Controlled TrialUsability of PCforMe in patients with advanced cancer referred to outpatient palliative care: results of a randomized, active-controlled pilot trial.
Low utilization of palliative care services warrant testing of new solutions to educate and engage patients around the benefits of palliative care. ⋯ PCforMe is a usable mobile health tool to prepare patients for an upcoming palliative care appointment. Further research is needed to test effectiveness.
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J Pain Symptom Manage · Jul 2019
Randomized Controlled TrialExtent and Determinants of Terminally Ill Cancer Patients' Concordance Between Preferred and Received Life-Sustaining Treatment States: An Advance Care Planning Randomized Trial in Taiwan.
Promoting patient value-concordant end-of-life care is a priority in health care systems but has rarely been examined in randomized clinical trials. ⋯ Our advance care planning intervention did not facilitate concordance between terminally ill cancer patients' preferred and received LST states, but patient value-concordant end-of-life care may be facilitated by interventions to cultivate accurate prognostic awareness, improve quality of life, support depressive patients, and clarify anxious patients' overexpectations of LST efficacy.
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J Pain Symptom Manage · Jun 2019
Randomized Controlled TrialThe hand-held fan and the Calming Hand for people with chronic breathlessness: a feasibility trial.
The battery-operated hand-held fan ("fan") and the Calming Hand (CH), a cognitive strategy, are interventions used in clinical practice to relieve chronic breathlessness. ⋯ A Phase III RCT is feasible. Mixed-methods data synthesis supports recovery time as a novel, meaningful outcome measure.
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J Pain Symptom Manage · Jun 2019
Randomized Controlled TrialA Fixed Nitrous Oxide and Oxygen Mixture for Analgesia in Children With Leukemia With Lumbar Puncture-induced Pain: A Randomized, Double-blind Controlled Trial.
Leukemia is the most common cancer in the childhood population. Lumbar puncture (LP) plays central role in the diagnosis and treatment process, but options for analgesia are limited. ⋯ This study demonstrated that self-administered fixed N2O/O2 is efficient to reduce pain related to LP in children with leukemia.