Palliative medicine
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Palliative medicine · May 2016
ReviewDoes the use of specialist palliative care services modify the effect of socioeconomic status on place of death? A systematic review.
Cancer patients in lower socioeconomic groups are significantly less likely to die at home and experience more barriers to access to palliative care. It is unclear whether receiving palliative care may mediate the effect of socioeconomic status on place of death. ⋯ There is some evidence to suggest that use of specialist palliative care may modify the effect of socioeconomic status on place of death.
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Palliative medicine · May 2016
Advance care planning in motor neuron disease: A qualitative study of caregiver perspectives.
Motor neuron disease is a fatal disease, characterised by progressive loss of motor function, often associated with cognitive deterioration and, in some, the development of frontotemporal dementia. Life-sustaining technologies are available (e.g. non-invasive ventilation and enteral nutrition) but may compromise quality of life for some patients. Timely commencement of 'Advance Care Planning' enables patients to participate in future care choices; however, this approach has rarely been explored in motor neuron disease. ⋯ Advance care planning can assist patients to achieve a sense of control and 'peace of mind' and facilitates important family discussion. However, the timing and style of its introduction needs to be approached sensitively. Tools and strategies for increasing the efficacy of advance care planning for motor neuron disease should be evaluated and implemented.
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Palliative medicine · May 2016
Is there pain with neuropathic characteristics in patients with amyotrophic lateral sclerosis? A cross-sectional study.
Amyotrophic lateral sclerosis is a progressive debilitating and lethal disorder, characterized by degeneration of motor neurons that warrant palliative care. Pain is frequent in patients with amyotrophic lateral sclerosis and significantly impacts on quality of life. ⋯ Even if amyotrophic lateral sclerosis is a disease of the motor system, pain is frequent and can rarely have neuropathic characteristics. Pain must be always sought and appropriately treated to limit quality of life impairment.
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Palliative medicine · May 2016
Defining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods: A White Paper from the European Association of Palliative Care.
People with intellectual disabilities often present with unique challenges that make it more difficult to meet their palliative care needs. ⋯ This White Paper presents the first guidance for clinical practice, policy and research related to palliative care for people with intellectual disabilities based on evidence and European consensus, setting a benchmark for changes in policy and practice.