Palliative medicine
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Palliative medicine · Jul 2017
Shared decision making about palliative chemotherapy: A qualitative observation of talk about patients' preferences.
Particularly at the end of life, treatment decisions should be shared and incorporate patients' preferences. This study examines elaboration and preference construction. ⋯ Elaboration and joint preference construction is not standard practice in consultations on palliative chemotherapy. Oncologists may benefit from realising this and training skills that support this key step of shared decision making. Also, repeated shared decision making throughout the course of palliative chemotherapy should be stimulated.
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Palliative medicine · Jul 2017
Palliative care for Parkinson's disease: Patient and carer's perspectives explored through qualitative interview.
Palliative care is recommended for non-malignant illnesses, including Parkinson's disease. However, past research with healthcare workers highlights unmet palliative needs in this population and referral rates to Specialist Palliative Care are low. Some healthcare workers perceive a 'fear' in their patients about introducing palliative care. However, less is known about the views of people with Parkinson's disease and their carers about palliative care. ⋯ A holistic palliative care approach could address the complex physical and psychosocial symptoms experienced by people with Parkinson's disease and their carers, and people with Parkinson's disease and their carers are open to palliative care. Further research needs to explore how palliative care can be introduced into the routine care for people with Parkinson's disease.
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Palliative medicine · Jul 2017
'The horse has bolted I suspect': A qualitative study of clinicians' attitudes and perceptions regarding palliative rehabilitation.
Palliative care patients have numerous rehabilitation needs that increase with disease progression. Palliative rehabilitation practices and perceptions of palliative medicine physicians towards the role of rehabilitation are largely unstudied. ⋯ A lack of consensus exists among palliative medicine specialists regarding the definition and scope of palliative rehabilitation. Participants generally expressed a wish to offer enhanced rehabilitation interventions, however described resource and skill-set limitations as significant barriers. Further research is required to establish an evidence base for palliative rehabilitation, to support its acceptance and widespread integration within specialist inpatient palliative care.
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Palliative medicine · Jul 2017
ReviewA metasynthesis study of family caregivers' transition experiences caring for community-dwelling persons with advanced cancer at the end of life.
Family caregivers (broadly defined as family and friends) experience multiple concurrent transitions when caring for a person with advanced cancer. ⋯ The findings provide a framework to guide the development of supportive programs and future research.
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Palliative medicine · Jul 2017
Managing risk during care transitions when approaching end of life: A qualitative study of patients' and health care professionals' decision making.
Increasing importance is being placed on the coordination of services at the end of life. ⋯ While managing risk is an important factor during care transitions, patients should be able to make choices on how to live with risk at the end of life. This requires reconsideration of transitional care and current discharge planning processes at the end of life.