The American journal of hospice & palliative care
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Am J Hosp Palliat Care · May 2011
Quality of life for children with life-limiting and life-threatening illnesses: description and evaluation of a regional, collaborative model for pediatric palliative care.
The care of children in the U. S. with life-limiting illnesses is inadequate. Misallocated resources, flawed assumptions and models of care, and a lack of appropriate professional education foster a costly, inefficient system that falls short of its true potential. This article details the evolution of a regional, shared approach to address these issues, the District of Columbia Pediatric Palliative Care Collaboration (DCPPCC), and includes its evolution, preliminary clinical results, and assessment of barriers encountered.
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Am J Hosp Palliat Care · May 2011
Feasibility of a webinar for coaching patients with chronic obstructive pulmonary disease on end-of-life communication.
Previous research has shown that patients with chronic obstructive pulmonary disease (COPD) desire conversations about end-of-life wishes. However, most clinicians do not initiate these discussions. We explored whether educating patients via Web conferencing (webinar) would equip them with knowledge and skills to engage in conversations about end-of-life care. ⋯ This pilot project demonstrated that a webinar to educate patients on end-of-life communication was acceptable for the majority of patients. Improvements in audio and video bandwidth may facilitate more interaction among virtual participants. This may be particularly useful for patient education on sensitive topics.
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Am J Hosp Palliat Care · May 2011
Factors associated with favorable attitudes toward end-of-life planning.
Planning for end-of-life (EOL) care can result in better patient outcomes and lowered health care costs. We hypothesized that knowledge and experiences with EOL care would influence patients' EOL planning (i.e., health care decisions, hospice use). ⋯ Regression analyses showed that prior knowledge of living wills and hospice services were associated with more favorable attitudes toward hospice care, preference for limited medical interventions at EOL, and more comfort in communicating about death and dying. Patient education on EOL care may increase hospice use, enhance EOL planning, and improve patient outcomes.
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Few studies have evaluated barriers to hospice from a hospice provider perspective. We assessed such views via a postal survey to all licensed hospices in Alabama (N = 193)-response = 55.4%. Most providers considered physicians and health care professionals to be somewhat knowledgeable of hospice, but also indicated a lack of knowledge constituted the barrier with the most impact in their communities. ⋯ Providers also described Medicare reimbursement cap issues that have resulted in barriers to hospice. Our findings were similar to previous investigations assessing provider perceptions. Future studies should explore how reimbursement cap issues affect the receipt and delivery of hospice care.
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The purpose of this phenomenological study was to explore the interpretation of stress, the appraisal of the stressors, as well as the top stressors experienced by hospice volunteers. Individual semistructured interviews were conducted with 15 hospice volunteers. ⋯ Hospice-related issues and personal issues were of concern to the volunteers. In addition, the timing of the stressors revealed that the most stress was felt at the beginning of their volunteer services, which has implications for hospice volunteer coordinators as they support their volunteers in the field.