Health expectations : an international journal of public participation in health care and health policy
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Informal caregivers experience daily hassles - a form of persistent stress, as a consequence of caregiving. This study aimed to develop and test a new theoretical model of health information-seeking behaviour, the Knowledge Hassles Information Seeking Model (KHISM). KHISM hypothesized that the knowledge hassles of caregivers - daily stressors experienced while dealing with tasks which require knowledge about the safety and effectiveness of the care-recipients' medicines - would influence caregivers' willingness to assist their care-recipient to use an Australian medication management service, Home Medicines Review (HMR). ⋯ The more caregivers experience hassles with medication knowledge, the more they perceive HMR to be a helpful information source and the more willing they are to use it. Targeted marketing centred on HMR as an information source may increase caregivers' demand for HMR. Further exploration of the phenomenon of knowledge hassles is warranted.
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Research into efforts to engage patients in the assessment of health-care teams is limited. ⋯ Patients perspectives are an important part of assessment in health care and suggest potential areas for improvement through team training.
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When patients have multiple chronic illnesses, it is not feasible to provide disease-based care when treatments for one condition adversely affect another. Instead, health-care delivery requires a broader person-centred treatment plan based on collaborative, patient-oriented values and goals. ⋯ It is feasible yet challenging to ask older, multimorbid patients to rate relative importance of values associated with life abilities/activities. Themes related to self-sufficiency, enjoyment/comfort in daily life and connection are salient and logically consistent with sociodemographic traits. Future studies should explore their role in goal-directed health care.
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To compare factors considered by parents to those considered by adolescents making decisions about chronic disease treatments. ⋯ Differences regarding influential decision factors exist within parent-adolescent dyads. Continued research is needed to determine the extent to which such differences are due to individual preferences or to variations in the information available to each person. Future decision support interventions will need to address parents' and adolescents' potentially disparate views and information needs.
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The aim of this study was to describe and explore parents' information and support needs when their child is diagnosed with type 1 diabetes, including their views about the timing and chronology of current support provision. Our objective was to identify ways in which parents could be better supported in the future. ⋯ Our findings suggest that professionals should consider the timing and chronology of support provision to ensure that parents' emotional and informational needs are addressed when their child is diagnosed and that practical advice and further emotional support are provided thereafter, which takes account of their day-to-day experiences of caring for their child.