The Journal of pediatrics
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The Journal of pediatrics · Dec 2019
Multicenter Study Observational StudyCaregiver Burden Due to Pulmonary Exacerbations in Patients with Cystic Fibrosis.
To describe the poorly understood burden of pulmonary exacerbations experienced by primary caregivers of children (aged 2-17 years) with cystic fibrosis (CF), who frequently require prolonged hospitalizations for treatment of pulmonary exacerbations with intravenous (IV) antibiotics. ⋯ Pulmonary exacerbations necessitating hospitalization impose a significant burden on primary caregivers of children with CF. Preventing pulmonary exacerbations may substantially reduce this burden.