European journal of oncology nursing : the official journal of European Oncology Nursing Society
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Randomized Controlled Trial Multicenter Study Comparative Study
A caregiver educational program improves quality of life and burden for cancer patients and their caregivers: a randomised clinical trial.
The French setting, including laws and guidelines, advocates greater involvement of informal caregivers in the care of cancer patients to protect the caregivers from depression, distress, and a decrease in their quality of life. This study aimed to assess the efficacy of a caregiver educational programme by measuring two outcomes: patients' and caregivers' quality of life and caregivers' burden. ⋯ An educational programme for caregivers encourages the involvement of patients, informal caregivers and health-care providers in a triangular relationship which enhances the quality of life of patients and caregivers alike and decreases caregivers' burden. Care organisation should therefore be rethought as a triangular relationship between patients, caregivers and health-care providers, with nurses as the mainstay.
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Comparative Study
Differences in morning and evening fatigue in oncology patients and their family caregivers.
To identify distinct latent classes of individuals based on ratings of morning and evening fatigue; evaluate for differences in phenotypic characteristics, as well as symptom and quality of life scores, among these latent classes; and evaluate for an overlap in morning and evening fatigue class membership. ⋯ Different characteristics were associated with morning and evening fatigue, which suggests that morning and evening fatigue may be distinct but related symptoms. Additional research is needed to elucidate the mechanisms that may underlie diurnal variability in fatigue.
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Comparative Study
Quality of life and symptom prevalence as reported by children with cancer in Lebanon.
To date, there are no studies on quality of life (QoL) and symptom prevalence reported by pediatric oncology patients in Lebanon. The purpose of this study was to evaluate the QoL, symptom prevalence and symptom management among a sample of pediatric oncology patients. ⋯ Overall, the participants had good health-related QoL as indicated by most of the PedsQL subscales. Symptom management was found to be inadequate and in some cases ineffective. More attention should be given to the management of symptoms in general using pharmacological and non-pharmacological techniques. Of particular importance is the importance of providing psychological support to alleviate symptom burden and improve QoL.
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Comparative Study
Variability in management of implantable ports in oncology outpatients.
To describe the variability in practice regarding the management of vascular access ports in adult oncology patients at Spanish outpatient clinics and to evaluate its compliance with the recommended procedural guidelines. ⋯ There are considerable differences in the management of the vascular access ports in terms of the recommendations published in the main international guidelines, though these are based on low level evidence. The results highlight the need for further quality studies in ports use and manipulation to lessen the variability between published recommendations and clinical practice.
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Comparative Study
It's time for updating primary nursing in pediatric oncology care: qualitative study highlighting the perceptions of nurses, physicians and parents.
The aim of the study was to describe nurses', physicians' and parents' perceptions of primary nursing as a working model in a paediatric oncology care setting. ⋯ Perceptions related to primary nursing as a working model were revealed to be confusing by nature from the point of view of all involved. Thus, clarification is needed in the role of primary nurses and the process of primary nursing in order to gain expected family and organisational outcomes.