Articles: palliative-care.
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This retrospective chart review presents the patient characteristics and utilization of the home-based palliative care program at The Hospital for Sick Children in Toronto. A total of 126 children dying from a broad spectrum of diseases was admitted during the period 1986-1994, referred from neurosurgery, genetic/metabolic, neurology, neonatology, nephrology, cardiology, general pediatrics, general surgery, and pulmonology. At the time of review, 15 patients remained alive and 18 had been discharged from the program. ⋯ Of the 93 patients who died in the program, 53% died at home, 18% died in community hospitals, and 29% died in a tertiary care facility. Analgesic medications were administered to 54% of the patients; 56% of these then required opioid analgesia for pain and symptom management. Home-based palliative care appeared to be an effective program for many children with a variety of terminal illnesses after adequate supports for the child and family had been established.
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An evaluation was made of relatives' experiences of the care of the patient and the treatment of themselves at a geriatric ward where elderly patients dying of cancer were nursed. A questionnaire was sent to 100 relatives after they had agreed on telephone to participate. 86 relatives answered the questions. The results shows that the majority of the relatives were satisfied with the care of the patient and the treatment of themselves as relatives. ⋯ They also need support and invitation to get the courage to ask questions and to participate in the care of their dying next-of-kin. We need deepen our knowledge of what kind of information the relatives demands and what information needs to be repeated. Evaluations of routines to make contact easier between patients, their relatives and hospital staff should be done continuously.
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J Pain Symptom Manage · Jan 1997
The Edmonton Functional Assessment Tool: preliminary development and evaluation for use in palliative care.
The purpose of this article is to report the development and psychometric testing of the Edmonton Functional Assessment Tool (EFAT). The EFAT was developed as a functional outcome measure for use with a palliative care population. The assessment identified ten functional activities important to patients even in the terminal stage of their illness. ⋯ Construct validity of the EFAT was tested with a sample of 101 patients admitted to the unit, which was later divided into the unit group (N = 88) and the home group (N = 13). Our findings provided initial evidence that the EFAT distinguished between the functional status of these two groups. The results of this preliminary study suggest that the EFAT requires further research and development, but shows potential to evolve as a useful clinical tool in palliative care.