Articles: caregivers.
-
Palliative medicine · Jun 2022
Employment and family caregiving in palliative care: An international qualitative study.
Family caregivers provide the majority of palliative care. The impact of family caregiving on employment and finances has received little research attention in the field of palliative care. ⋯ Supporting carers to retain employment whilst providing care has potential benefits for the patient at end of life, the caregiver, and the wider economy and labour market. Employers, policymakers and governments have a role to play in developing and implementing policies to support working carers to remain in employment.
-
Palliative medicine · Jun 2022
Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review.
Malignant bowel obstruction occurs in up to 50% of people with advanced ovarian and 15% of people with gastrointestinal cancers. Evaluation and comparison of interventions to manage symptoms are hampered by inconsistent evaluations of efficacy and lack of agreed core outcomes. The patient perspective is rarely incorporated. ⋯ Some of the most devastating sequelae of malignant bowel obstruction, such as pain and psychological distress, are not included routinely in its clinical or research evaluation. These data will contribute to a wider body of work to ensure the patient and caregiver perspective is recognised in the development of a core outcome set.
-
J Pain Symptom Manage · Jun 2022
The Lived Experience of Physical Separation for Hospice Patients and Families amid COVID-19.
Many hospice patients were physically separated from family members and healthcare professionals during the early COVID-19 pandemic. ⋯ Inclusive, innovative connection strategies are needed to ensure that high-quality end-of-life care is provided to hospice patients and their family caregivers when physical presence must be limited.
-
Childhood eczema is often poorly controlled owing to underuse of emollients and topical corticosteroids (TCS). Parents/carers report practical and psychosocial barriers to managing their child's eczema, including child resistance. Online interventions could potentially support parents/carers; however, rigorous research developing such interventions has been limited. ⋯ Parents/carers need support in effectively managing and co-managing their child's eczema. The key output of this research is Eczema Care Online for Families, an online intervention for parents/carers of children with eczema, which is being evaluated in a randomised trial.
-
African health sciences · Jun 2022
Burden of caregiving among caregivers of patients with severe mental illnesses in Benin City, Nigeria.
Severe mental illness exerts a tremendous burden on both the sufferer and caregiver. Such burden has been severally identified as enormous involving psychological, physical and economic challenges. ⋯ There is a need to provide social support for caregivers of persons suffering from mental illness. Subsidization of cost of medication and hospitalization can reduce the burden experienced.