• Vicki Xafis, Lynn Gillam, Jenny Hynson, Jane Sullivan, Mary Cossich, and Dominic Wilkinson.
• 1 Discipline of Obstetrics and Gynaecology, Women's and Children's Hospital, The University of Adelaide , Adelaide, Australia .
• J Palliat Med. 2015 Nov 1; 18 (11): 945-55.

BackgroundWritten resources in adult intensive care have been shown to benefit families facing end of life (EoL) decisions. There are few resources for parents making EoL decisions for their child and no existing resources addressing ethical issues. The Caring Decisions handbook and website were developed to fill these gaps.AimWe discuss the development of the resources, modification after reviewer feedback and findings from initial pilot implementation.DesignA targeted literature review-to identify resources and factors that impact on parental EoL decision-making; development phase-guided by the literature and the researchers' expertise; consultation process-comprised a multi-disciplinary panel of experts and parents; pilot evaluation study-hard-copy handbook was distributed as part of routine care at an Australian Children's Hospital.Setting/ParticipantsTwelve experts and parents formed the consultation panel. Eight parents of children with life-limiting conditions and clinicians were interviewed in the pilot study.ResultsNumerous factors supporting/impeding EoL decisions were identified. Caring Decisions addressed issues identified in the literature and by the multidisciplinary research team. The consultation panel provided overwhelmingly positive feedback. Pilot study parents found the resources helpful and comforting. Most clinicians viewed the resources as very beneficial to parents and identified them as ideal for training purposes.ConclusionsThe development of the resources addressed many of the gaps in existing resources. The consultation process and the pilot study suggest these resources could be of significant benefit to parents and clinicians.

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