• World Neurosurg · Jul 2020

    EVALUATING EDUCATIONAL MATERIAL FROM THE PERSPECTIVE OF INFORMAL CAREGIVERS OF CHILDREN WITH HYDROCEPHALY: A QUALITATIVE STUDY.

    • Tavares Paloma de Aro Jorge PAJ Department of Nursing, Botucatu Medical School, UNESP - Universidade Estadual Paulista, Botucatu, Brazil. Electronic address: paloma.dearo, Tamires Baraviera Ukawa, Pedro Tadao Hamamoto Filho, and de Avila Marla Andréia Garcia MAG Department of Nursing, Botucatu Medical School, UNESP - Universidade Estadual Paulista, Botucatu, Brazil..
    • Department of Nursing, Botucatu Medical School, UNESP - Universidade Estadual Paulista, Botucatu, Brazil. Electronic address: paloma.dearo123@gmail.com.
    • World Neurosurg. 2020 Jul 1; 139: 427-433.

    ObjectiveWe evaluated whether educational material about hydrocephalus and its treatment previously developed by health professionals corresponded with the daily life of caregivers of children with hydrocephalus.MethodsWe conducted a qualitative study at a university hospital in Brazil, interviewing 32 informal caregivers of children with hydrocephalus. The methodological framework of Bardin content analysis was used to analyze the data.ResultsThe educational material adequately represented caregivers' experience regarding daily life, surgery experiences, and care needed by children with hydrocephalus. In addition, the educational material may help to identify the signs and symptoms of ventriculoperitoneal shunt. However, the material did not address the limitations of children disabled with hydrocephalus in daily life.ConclusionsFrom the perspective of informal caregivers of children with hydrocephalus, the educational material corresponded with families' daily life and surgical experience and may be used by health professionals to reinforce important points for the care for children with hydrocephalus, facilitating the health education process.Copyright © 2020 Elsevier Inc. All rights reserved.

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