Journal of pain and symptom management
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J Pain Symptom Manage · Feb 2005
Randomized Controlled Trial Clinical TrialTransformative aspects of caregiving at life's end.
We do not know to what extent the needs of caregivers involved with patients at the end of life are being met by care providers and whether caregiving at life's end can be a positive experience. We used the Hospice Experience Model of Care as a framework for understanding the effect of transformative tasks on caregiving at life's end. ⋯ Two mediators reduce caregiver burden and all four of the mediators improve caregiver gain. Caregivers who are able to attend to these transformative aspects find more gain in the caregiving experience.