Journal of pain and symptom management
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J Pain Symptom Manage · Dec 2017
ReviewAdvance Care Planning in Palliative Care for People with Intellectual Disabilities: a Systematic Review.
Advance care planning (ACP) is defined as a person-centered, ongoing process of communication that facilitates patients' understanding, reflection, and discussion of goals, values, and preferences for future care. There is evidence for the general palliative care population that ACP increases compliance with patients' end-of-life preferences and improves quality of care near the end of life. ⋯ There are some indications that ACP could be useful for people with ID, but more knowledge is needed about whether and how ACP should be used.
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J Pain Symptom Manage · Dec 2017
ReviewPatient and caregiver-reported assessment tools for palliative care: summary of the 2017 AHRQ Technical Brief.
Assessment tools are data collection instruments that are completed by or with patients or caregivers and which collect data at the individual patient or caregiver level. ⋯ Few to no tools address the spiritual, ethical, or cultural domains or patient-reported experience with end-of-life care. While some data exist on psychometric properties of tools, the responsiveness of different tools to change and/or comparisons between tools have not been evaluated. Future research should focus on developing or testing tools that address domains for which few tools exist, evaluating responsiveness, and comparing tools.
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J Pain Symptom Manage · Dec 2017
Valuing attributes of home palliative care with service users: a pilot discrete choice experiment.
Discrete choice experiment (DCE) is a quantitative method that helps determine which service attributes are most valued by people and consequently improve their well-being. ⋯ The DCE method is feasible and acceptable but not all patients are able to participate. In the main study phase, we will give more attention to the explanation of the waiting time attribute.
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J Pain Symptom Manage · Dec 2017
Meaning in life as a mediator between physical impairment and the wish to hasten death in patients with advanced cancer.
Meaning in life (MiL) is a key factor for ensuring spiritual well-being and quality of life among patients with life-threatening illnesses. However, the role of MiL in relation to the wish to hasten death (WTHD) and its interaction with other physical and psychological factors in patients with advanced cancer has not yet been studied. ⋯ These results support the proposed model and provide evidence of a mediator effect of MiL and depression on the relationship between physical impairment and the WTHD in advanced patients. Our findings suggest that interventions to enhance MiL could help to address and/or prevent the emergence of a WTHD in this population.
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