Journal of pain and symptom management
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J Pain Symptom Manage · Feb 2018
Retraction Of PublicationPromoting Palliative Care Internationally: Building Leaders to Promote Education, Practice, and Advocacy.
In February 2000, nine nursing educators, practitioners, and researchers met in Nashville, Tennessee, to develop a palliative care curriculum specifically for nurses. The following month, 22 advisors from nursing organizations across the United States convened in Washington, DC to review the recommended curriculum development and dissemination plans for end-of-life care throughout nursing schools, hospitals, hospices, home care, and geriatric settings. ⋯ This work, beginning in 2000 with the development of the End-of-Life Nursing Education Consortium curriculum, has been taught in every state across America and in 91 countries around the world and has been translated into eight languages. Over 21,400 trainers have returned to their institutions and educated over 642,000 colleagues.
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J Pain Symptom Manage · Feb 2018
Retraction Of PublicationPalliative Care and Human Rights: A Decade of Evolution in Standards.
Human rights standards to address palliative care have developed over the last decade. ⋯ Development of human rights standards in relation to palliative care has been most notable in the context of the right to health, freedom from torture and ill treatment, and the rights of older persons. More work is needed in the context of the rights of children, and human rights treaty bodies are still not consistently addressing state obligations with regards to palliative care.
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J Pain Symptom Manage · Feb 2018
Outcomes that Define Successful Advance Care Planning: A Delphi Panel Consensus.
Standardized outcomes that define successful advance care planning (ACP) are lacking. ⋯ A large, multidisciplinary Delphi panel developed an Organizing Framework and rated the importance of ACP outcome constructs. Top rated outcomes should be used to evaluate the success of ACP initiatives. More research is needed to create reliable and valid measurement tools for the highest rated outcomes, particularly "care consistent with goals."
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J Pain Symptom Manage · Feb 2018
Clinical TrialThe impact of supporting family caregivers pre-bereavement on outcomes post-bereavement: Adequacy of end of life support and achievement of preferred place of death.
The investigation of the situation of bereaved family caregivers following caregiving during the end-of-life phase of illness has not received enough attention. ⋯ The results from this study provide evidence that the CSNAT intervention has a positive impact on perceived adequacy of support of bereaved family caregivers and achievement of preferred place of death according to caregivers. The benefits gained by caregivers in being engaged in early and direct assessment of their support needs before bereavement reinforce the need for palliative care services to effectively support caregivers well before the patient's death.
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J Pain Symptom Manage · Feb 2018
A Longitudinal Study of PROMIS Pediatric Symptom Clusters in Children Undergoing Chemotherapy.
Children in treatment for cancer experience multiple, troubling, and interrelated symptoms. Analyzing the interrelatedness of symptoms and how that changes during treatment could yield clinically relevant patient profiles to guide patient care. ⋯ Children experiencing troubling symptoms during cancer treatment are heterogeneous. With respect to the PROMIS symptom measures, two a priori unknown distinct latent profiles of patients were identified in a course of chemotherapy, and the transitions in the profile status were significantly predicted by a baseline single-item fatigue measure.