Journal of pain and symptom management
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J Pain Symptom Manage · Nov 2019
Predictors of Advance Care Planning Documentation in Patients with Underlying Chronic Illness who Died from Traumatic Injury.
Advance care planning (ACP) is difficult in the setting of a life-threatening trauma but may be equally important in this context, especially with increasing numbers of trauma victims being elderly or having multimorbidity. ⋯ Our findings suggest that patient characteristics play an important role in the completion of ACP among patients with chronic life-limiting illness and who died from sudden severe injury. Interventions to improve ACP completion by patients with serious chronic conditions have the potential for increasing goal-concordant care in the event of traumatic injury.
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J Pain Symptom Manage · Nov 2019
Translation and validation of the 10-item FAMCARE scale to assess satisfaction of family caregivers with care given to cancer patients.
Family satisfaction with care is an important quality indicator in palliative care. ⋯ FAMCARE showed good reliability and validity.
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J Pain Symptom Manage · Nov 2019
Cancer related pain: a longitudinal study of time to stable pain control and its clinico-demographic predictors.
Multidimensional assessment is pivotal in managing cancer-related pain. ⋯ SPC is achievable for most patients with cancer pain. Recognition of strong predictors of time to SPC, such as substance abuse, a neuropathic pain component, soft tissue pain, and current use of adjuvant analgesia, may help to triage care services based on therapeutic need and guide analgesic interventions.
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J Pain Symptom Manage · Nov 2019
Stakeholders' Perceptions and Information Needs Regarding Research Medical Donation.
Research Medical Donation (RMD), which entails collecting human tissue within hours after death, benefits cancer research but data are limited regarding barriers institutions face accruing patients to RMD programs. ⋯ Patients, families, and cancer clinicians have generally low knowledge of RMD but, upon learning about it, deem it valuable for scientific advancement (particularly for rare and virulent cancers), necessary to be carried out with individualized sensitivity to end-of-life issues, and through training programs with involved clinical staff.
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J Pain Symptom Manage · Nov 2019
Assessing the Reliability and Validity of a Brief Measure of Caregiver Quality of Life.
There is a need for brief measurement instruments that do not cause burden to hospice caregivers. The Caregiver Quality of Life Index (CQLI) has been used in several studies, but assessment of its psychometric properties has been minimal. The CQLI-R (revised) instrument was found to have equivalent properties but also has had minimal testing in small samples. ⋯ The CQLI-R is an easy-to-use instrument to assess caregiver quality of life. Despite adequate reliability and construct validity, further evidence is needed to support content validity.