Journal of pain and symptom management
-
J Pain Symptom Manage · Jan 2019
ReviewControl and context are central for people with advanced illness experiencing breathlessness: A systematic review and thematic-synthesis.
Breathlessness is common and distressing in advanced illness. It is a challenge to assess, with few effective treatment options. To evaluate new treatments, appropriate outcome measures that reflect the concerns of people experiencing breathlessness are needed. ⋯ People with advanced illness living with breathlessness have concerns in multiple domains, supporting a concept of "total breathlessness." This adapted model can help to guide comprehensive clinical assessment and inform future outcome measurement in clinical practice and research.