Journal of pain and symptom management
-
J Pain Symptom Manage · Jan 2020
ReviewPatient´s Perspectives on the Notion of a Good Death: A Systematic Review of the Literature.
There is no clear definition of what constitutes a good death or its features. Patients, caregivers, physicians, and relatives have different notions of a good death. Discussions have been driven by academic perspectives, with little research available on the patients' perspectives. ⋯ Although sharing common core elements, patients' notions of good death are individual, unique, and different. They are dynamic in nature, fluctuating within particular groups and during the actual process of dying. Formal and informal caregivers should carefully follow-up and respect the patient's individual concepts and preferences regarding death and dying, while attending to shared core elements, to better adjust clinical decisions.
-
J Pain Symptom Manage · Jan 2020
Validation of the Japanese Version of the Functional Assessment of Cancer Therapy-Cognitive Function Version 3.
Cancer therapy-induced cognitive impairment adversely affects the quality of life of patients with cancer but cannot be detected by neuropsychological tests. ⋯ The Japanese version of the FACT-Cog is a valid and reliable self-report measure of the cognitive function of patients with breast cancer. Its utility to clinicians and researchers in measuring the cognitive concerns of patients with cancer in Japan will serve as a further test of its validity.
-
J Pain Symptom Manage · Jan 2020
Burnout And Resilience after a Decade in Palliative Care (BARD): What 'Survivors' have to teach us. A Qualitative Study of Palliative Care Clinicians with more than 10 years of experience.
Burnout is common among palliative care clinicians (PCCs). Resilience helps to reduce burnout, compassion fatigue, and is associated with longevity in palliative care. ⋯ Our findings highlight the evolving process of transformational growth that PCCs must repeatedly undergo as they strive toward sustained resilience and longevity. It also stresses the importance of taking individual and collective responsibility toward building a culture of personal and team resilience.
-
J Pain Symptom Manage · Jan 2020
Impact of palliative care on quality of end-of-life care among Brazilian patients with advanced cancers.
Many patients with advanced cancer experience aggressive care during the end of life (EOL). Several studies have evaluated the benefits of palliative care (PC) on the reduction of aggressive measures; however, limited data are available about their benefit in Brazilian patients. ⋯ Patients with an advanced cancer consultation by PC staff received less aggressive care at the EOL when compared with patients without PC.
-
J Pain Symptom Manage · Jan 2020
Psychometric Properties of the Arabic Version of the Functional Assessment of Chronic Illnesses Therapy-Fatigue (FACIT-F) in Arabic Cancer Patients.
The Functional Assessment of Chronic Illness Therapy (FACIT) is a measurement system that was developed to assess the health-related quality of life among patients with cancer and other chronic illnesses. The Functional Assessment of Chronic Illness Therapy-Fatigue (FACIT-F) is a 40-item questionnaire, and it is one of the most frequently used instruments to assess fatigue in cancer populations. The aim of this study was to evaluate the psychometric properties of the Arabic FACIT-F among patients diagnosed with cancer. ⋯ The Arabic versions of the FACIT-Fatigue and FACT-G demonstrated good reliability and validity for assessing fatigue and quality of life in patients diagnosed with cancer.