Journal of pain and symptom management
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J Pain Symptom Manage · Oct 2020
Dying from Covid-19: Loneliness, end-of-life discussions and support for patients and their families in nursing homes and hospitals. A national register study.
Preparation for an impending death through end-of-life (EOL) discussions and human presence when a person is dying is important for both patients and families. ⋯ Dying from COVID-19 negatively affects the possibility of holding an EOL discussion and the chances of dying with someone present. This has considerable social and existential consequences for both patients and families.
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J Pain Symptom Manage · Oct 2020
Creating a Resilient Research Program - Lessons Learned from a Palliative Care Research Lab.
Conducting palliative care research can be personally and professionally challenging. Although limitations in funding and training opportunities are well described, a less recognized barrier to successful palliative care research is creating a sustainable and resilient team. In this special report, we describe the experience and lessons learned in a single palliative care research laboratory. ⋯ Finally, we changed our leadership approach to foster psychological safety and shared mission. Since then, no team member has left, and the program has thrived. As the demand for rigorous palliative care research grows, we hope this report will provide perspective and ideas to other established and emerging palliative care research programs.
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J Pain Symptom Manage · Oct 2020
Racial and Ethnic Differences in Communication and Care for Children with Advanced Cancer.
Racial and ethnic disparities in end-of-life care are well documented among adults with advanced cancer. ⋯ Parental understanding of prognosis is limited across racial and ethnic groups; racial and ethnic minorities are disproportionately affected. Perhaps as a result, minority children experience higher rates of high-intensity medical care. Work to improve prognostic understanding should include focused work to meet needs of minority populations.