Journal of pain and symptom management
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J Pain Symptom Manage · Oct 2021
Outcomes of Specialty Palliative Care Interventions for Patients with Hematologic Malignancies: A Systematic Review.
The outcomes of specialty palliative care (PC) interventions for patients with hematologic malignancies (HMs) is under-investigated. ⋯ Specialty PC interventions improve healthcare outcomes for patients with HMs and should be implemented early and often. There remains a need for additional studies investigating PC use exclusively in patients with HMs.
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J Pain Symptom Manage · Oct 2021
ReviewThe Palliative Care information needs of patients with amyotrophic lateral sclerosis and their informal caregivers: a scoping review.
Amyotrophic Lateral Sclerosis (ALS) is a fatal neurodegenerative disease, associated with impaired quality of life for patients and caregivers. As treatment is largely supportive, early involvement of palliative care (PC) is recommended as standard of care. Despite this, literature surrounding PC information needs is limited. ⋯ ALS patients and caregivers have unique and varying PC information needs. Future research should better characterize these needs to improve patient and caregiver quality of life. The delivery of information must be tailored to individual patient or caregiver preferences.
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J Pain Symptom Manage · Oct 2021
ReviewThe Palliative Care information needs of patients with amyotrophic lateral sclerosis and their informal caregivers: a scoping review.
Amyotrophic Lateral Sclerosis (ALS) is a fatal neurodegenerative disease, associated with impaired quality of life for patients and caregivers. As treatment is largely supportive, early involvement of palliative care (PC) is recommended as standard of care. Despite this, literature surrounding PC information needs is limited. ⋯ ALS patients and caregivers have unique and varying PC information needs. Future research should better characterize these needs to improve patient and caregiver quality of life. The delivery of information must be tailored to individual patient or caregiver preferences.