Journal of pain and symptom management
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J Pain Symptom Manage · Jul 2022
ReviewThe Design of a Data Management System for a Multicenter Palliative Care Cohort Study.
Prospective cohort studies of individuals with serious illness and their family members, such as children receiving palliative care and their parents, pose challenges regarding data management. ⋯ Investigators planning future multicenter prospective cohort studies can consider attributes of the data infrastructure we describe when designing their data management system.
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J Pain Symptom Manage · Jul 2022
Multicenter Study Observational StudyAssociation of antipsychotic dose with survival of advanced cancer patients with delirium.
Delirium is common in patients with advanced cancer, and antipsychotics are widely used for its management. ⋯ Higher doses of antipsychotics were associated with increased mortality in terminally ill cancer patients with delirium. To minimize the potential mortality risk, antipsychotics should be started at low doses and titrated carefully.
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J Pain Symptom Manage · Jul 2022
Hospice Care Experiences Among Decedents with Huntington's Disease.
Little is known about the hospice care experiences of those with Huntington's Disease (HD). ⋯ Our findings highlight the benefits of hospice care for those with HD and their families and may be useful for patients with HD when making decisions regarding options for end-of-life care.
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J Pain Symptom Manage · Jul 2022
Validation of 'Care Of the Dying Evaluation' (CODETM) within an international study exploring bereaved relatives' perceptions about quality of care in the last days of life.
Assessing quality of care provided during the dying phase using validated tools aids quality assurance and recognizes unmet need. ⋯ Within an international context, good evidence supports the validity and reliability of CODETM for assessing the quality of care provided in the last days of life.
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J Pain Symptom Manage · Jul 2022
Mindful self-care, self-compassion, and resilience among palliative care providers during the COVID-19 pandemic.
Given the adverse impact of COVID-19 on the wellbeing of palliative care providers, there is a growing need to better understand protective variables, such as self-care, mindfulness and self-compassion, as they relate to resilience. ⋯ Results from this study extend the currently limited knowledge of self-care, mindfulness and self-compassion, as protective variables related to resilience in palliative care providers during the COVID-19 pandemic. Further longitudinal studies into causal effects on health and wellbeing over time are needed.