Journal of pain and symptom management
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J Pain Symptom Manage · Jul 2022
Hospice Care Experiences Among Decedents with Huntington's Disease.
Little is known about the hospice care experiences of those with Huntington's Disease (HD). ⋯ Our findings highlight the benefits of hospice care for those with HD and their families and may be useful for patients with HD when making decisions regarding options for end-of-life care.
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J Pain Symptom Manage · Jul 2022
Validation of 'Care Of the Dying Evaluation' (CODETM) within an international study exploring bereaved relatives' perceptions about quality of care in the last days of life.
Assessing quality of care provided during the dying phase using validated tools aids quality assurance and recognizes unmet need. ⋯ Within an international context, good evidence supports the validity and reliability of CODETM for assessing the quality of care provided in the last days of life.
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J Pain Symptom Manage · Jul 2022
Mindful self-care, self-compassion, and resilience among palliative care providers during the COVID-19 pandemic.
Given the adverse impact of COVID-19 on the wellbeing of palliative care providers, there is a growing need to better understand protective variables, such as self-care, mindfulness and self-compassion, as they relate to resilience. ⋯ Results from this study extend the currently limited knowledge of self-care, mindfulness and self-compassion, as protective variables related to resilience in palliative care providers during the COVID-19 pandemic. Further longitudinal studies into causal effects on health and wellbeing over time are needed.
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J Pain Symptom Manage · Jul 2022
Development of Entrustable Professional Activities for Specialist Hospice and Palliative Care Pharmacists.
Entrustable professional activities (EPAs) translate competencies into explicit, practical terms that clearly state the expected roles and responsibilities of clinicians who have achieved proficiency and expertise in a field. EPAs are defined for Hospice and Palliative Medicine physicians but not for other members of Hospice and Palliative Care (HAPC) interprofessional teams, including pharmacists. ⋯ Fifteen consensus EPAs describe essential activities of HAPC pharmacists in direct patient care, leadership, education, and scholarship. These EPAs will further guide pharmacist training programs, HAPC services seeking to incorporate a specialized pharmacist on the team, and currently practicing HAPC pharmacists.
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J Pain Symptom Manage · Jul 2022
Pediatric Hospice and Palliative Care Services and Needs Across the Northwest United States.
Given workforce and funding constraints, pediatric hospice and palliative care clinicians often find challenges providing services for seriously ill children and families, particularly in low resource and rural/remote areas. ⋯ Pediatric hospice and palliative care clinicians face numerous barriers and may benefit from a coalition that provides networking and tailored education.