Journal of pain and symptom management
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J Pain Symptom Manage · Aug 2022
Clinicians' Perceptions of Collaborative Palliative Care Delivery in Chronic Kidney Disease.
Guidelines recommend palliative care for patients with chronic kidney disease (CKD), who experience a high pain and symptom burden, and receive intensive treatments that often do not align with their values. A lack of scalable specialty palliative care services has prompted calls for attention to primary palliative care, delivered in primary care and nephrology settings. ⋯ Interventions to address gaps in palliative care delivery for people living with CKD should incorporate systematic identification of patients with palliative care needs and structural mechanisms to meeting those needs via specialty and primary palliative care.
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J Pain Symptom Manage · Aug 2022
Preferences of Older People with a Life-Limiting Illness: Evidence from a Discrete Choice Experiment.
There is limited evidence about which elements and characteristics of palliative care service provision improve the experiences of older people living with life-limiting illness. ⋯ People living with a life-limiting illness value care that focuses on quality of life, ensures barrier-free access to services and provides sufficient support for relatives. In the context of limited resources and growing demand for care, this study provides evidence about the service elements palliative care delivery models should prioritize and evaluate.
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J Pain Symptom Manage · Aug 2022
Development of Palliative Care Services at a Tertiary Care Teaching Hospital in Pakistan: retrospective analysis of existing Palliative Care program.
Palliative care (PC) is an important aspect of providing holistic care to patients and their families who are dealing with a serious or life limiting illness. Medical community and public poorly understand the implications and benefits of these services. Unfortunately, because of this, PC remains a neglected area of healthcare in the most institutions of Pakistan. ⋯ The enormous burden of life-threatening illnesses is associated with physical and psychosocial sufferings, which explains the illustrious need for PC in developing countries such as Pakistan. PCS at AKUH initiated in 2017. Nevertheless, there are challenges to service expansion and progress, which are being addressed.
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J Pain Symptom Manage · Aug 2022
Distinguishing symptom patterns in adults newly diagnosed with cancer: a latent class analysis.
Socio-demographic differences, including place of residence, socio-economic status, ethnicity, and gender, have been associated with various inequities in cancer care outcomes. ⋯ The results indicated that there were substantial differences in symptom patterns at the time of the initial oncology visit, which were associated with both clinical diagnoses and socio-demographic differences. These results point to the importance of taking the social situation of patients into account, and not just diagnosis, to better understand differences in symptom patterns of people living with cancer.
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J Pain Symptom Manage · Aug 2022
ReviewProgress update: Development of palliative care from 2017 to 2020 in five countries in Eurasia.
In the early 2000s, palliative care was largely unknown in the Eurasian region. For a period of twenty years starting around 2002, Open Society Foundations (OSF) supported palliative care pioneers in the region to establish palliative care services, train health providers, and advocate for the integration into health services. ⋯ Experiences in these countries suggest that a strategy that initially emphasizes training, technical assistance, and engagement to create the building blocks for palliative care combined with or followed by public advocacy and campaigning to demand roll out of services can result in significant advances. Continued progress, however, is not guaranteed, especially considering the COVID-19 pandemic and dwindling donor support.