Journal of pain and symptom management
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J Pain Symptom Manage · Mar 2023
ReviewSelf-perceived Burden for People with Life-threatening Illness: A Qualitative Systematic Review.
The perception of being a burden to others is a significant concern for people with life-threatening illness. It is unclear what underpins the concept of "self-perceived burden". ⋯ SPB is not a static perception but a fluctuating and complex 'process' based on uncertainty. More diverse understandings and following interventions to achieve a better balance of care should be sought.
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J Pain Symptom Manage · Mar 2023
Home hospice family caregivers' use of audio diaries and reported prevalence of patient and caregiver symptoms.
Family caregivers are essential to home hospice care for patients with advanced cancer, including reporting patient symptoms to hospice providers for follow-up. Hospice caregiving can also impact personal well-being. ⋯ Prospective audio diaries offer a viable avenue for communicating symptoms and support needs. Future research will focus on leveraging longitudinal data for developing focused and tailored caregiver support interventions.
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J Pain Symptom Manage · Mar 2023
Determining goal concordant care in the intensive care unit using Electronic Health Records.
Goal concordant care (GCC) is the alignment of care to patient values and preferences. GCC is a major outcome of communication with patients and families in serious/critical illness. Using the electronic health record (EHR) to study the provision of GCC would be pragmatic and cost-effective for research and quality improvement efforts. ⋯ The EHR can be used to understand patient goals, but the information is scattered across the multi-disciplinary notes. Improving EHR and external validation will facilitate ascertainment of goal concordance as an important outcome measure.
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J Pain Symptom Manage · Mar 2023
Randomized Controlled TrialExamining Caregiver Outcomes in the CONNECT Intervention for Patients with Advanced Cancer.
Palliative care offers patient and family centered approaches that may mitigate risk of caregiver burden and poor mood. ⋯ Caregivers in CONNECT did not experience improved burden or mood, however, they reported higher self-efficacy compared to caregivers receiving standard care. This study highlights the need for strategies to optimize caregiver outcomes in palliative care interventions.
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J Pain Symptom Manage · Mar 2023
National Survey Using CFIR to Assess Early Outpatient Specialty Palliative Care Implementation.
The American Society of Clinical Oncology (ASCO) recommends that outpatient specialty palliative care (OSPC) be offered within eight weeks of an advanced cancer diagnosis. To meet the rising demand, there has been an increase in the availability of OSPC services at National Cancer Institute (NCI)-designated cancer centers; however, many OSPC referrals still occur late in the disease course. ⋯ Most barriers were modifiable in nature and related to the "Inner Setting" domain of the CFIR, which highlights the need for careful strategic planning by leadership when implementing early OSPC.