Journal of pain and symptom management
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J Pain Symptom Manage · Jul 2023
Randomized Controlled TrialTechnology-Assisted mHealth Caregiver Support to Manage Cancer Patient Symptoms: A randomized controlled trial.
Caregivers managing symptoms of family members with cancer during home hospice care, often feel ill-prepared and need patient care coaching. ⋯ Automated mHealth symptom reporting by caregivers, paired with tailored caregiver coaching on symptom management and nurse notifications, reduces cancer patients' physical and psychosocial symptoms during home hospice, providing a novel and efficient approach to improving end-of-life care.
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J Pain Symptom Manage · Jul 2023
Randomized Controlled TrialEffect of an Artificial Intelligence Decision Support Tool on Palliative Care Referral in Hospitalized Patients: A Randomized Clinical Trial.
Palliative care services are commonly provided to hospitalized patients, but accurately predicting who needs them remains a challenge. ⋯ A decision support tool integrated into palliative care practice and leveraging AI/ML demonstrated an increased palliative care consultation rate among hospitalized patients and reductions in hospitalizations.
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J Pain Symptom Manage · Jul 2023
Observational StudyDecisional-regret trajectories from end-of-life decision making through bereavement.
Regret plays a central role in surrogate decision making. Research on decisional regret in family surrogates is scarce and lacks longitudinal studies to illustrate the heterogenous, dynamic evolution of decisional regret. ⋯ Surrogates heterogeneously suffered decisional regret from EOL decision making through bereavement as evident by four identified distinct decisional-regret trajectories. Early identification and prevention of increasing/prolonged decisional-regret trajectories is warranted.
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J Pain Symptom Manage · Jul 2023
Quality Indicators for Adolescents and Young Adults with Advanced Cancer: A Modified Delphi Process with Patients, Family Members, and Clinicians.
Quality measures have been devised for end-of-life care of older adults with cancer, but are lacking for adolescents and young adults (AYAs). ⋯ A patient- and family-centered process for quality indicator development led to strong endorsement of multiple potential indicators by Delphi participants. Further validation and refinement will be performed using a survey of bereaved family members.