Journal of pain and symptom management
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J Pain Symptom Manage · Apr 2023
Randomized Controlled TrialEffects of a Patient Question Prompt List on Question Asking and Self-Efficacy During Outpatient Palliative Care Appointments.
Question prompt lists (QPLs) promote participation during medical appointments, including in the context of serious illness care. However, no studies have used parameters of a theoretical framework to examine the effects of QPL use in outpatient palliative care. ⋯ Despite their promise in previous studies, results of the current study suggest that QPLs may lack potency to shift patient and care partner question asking in palliative care appointments, and that other mechanisms outlined in Self-Efficacy Theory may characterize the relation between question asking and self-efficacy.
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J Pain Symptom Manage · Apr 2023
Randomized Controlled TrialEffects of Spiritual Care on Well-being of Intensive Care Family Surrogates: A Clinical Trial.
Critical illness of a family member is associated with high emotional and spiritual distress and difficult medical decisions. ⋯ Proactive, semistructured spiritual care delivered by chaplains improves well-being for ICU surrogates. Results provide evidence for inclusion of chaplains in palliative and intensive care teams.
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J Pain Symptom Manage · Mar 2023
Randomized Controlled TrialExamining Caregiver Outcomes in the CONNECT Intervention for Patients with Advanced Cancer.
Palliative care offers patient and family centered approaches that may mitigate risk of caregiver burden and poor mood. ⋯ Caregivers in CONNECT did not experience improved burden or mood, however, they reported higher self-efficacy compared to caregivers receiving standard care. This study highlights the need for strategies to optimize caregiver outcomes in palliative care interventions.
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J Pain Symptom Manage · Dec 2022
Randomized Controlled TrialVideo and In-Person Palliative Care Delivery Challenges Before and During the COVID-19 Pandemic.
Palliative care (PC) clinicians faced many challenges delivering outpatient care during the coronavirus-19 (COVID-19) pandemic. ⋯ Technical difficulties related to PC video visits improved, whereas in-person visit challenges related to absent patients' family members worsened during the pandemic.
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J Pain Symptom Manage · Nov 2022
Randomized Controlled TrialVulnerability and Resilience: Phenomenological Analysis of Cancer Patients Value Directives.
Personal values are individual conceptions of the desirable appraisals and actions that guide our attitudes and behaviour. Advance care planning (ACP) now emphasises the consideration of personal life goals and values expressed as a Values Directive (VD) to guide discussions concerning medical treatment. ⋯ Cancer patients seek to make meaning of their experiences, concurrently posturing vulnerability and resilience, despite conflicting emotions and experiences. Given that the choices people make as they approach dying relate to their most deeply held values, ACP conversations should explore how patients draw from their values and life goals to optimise their adaptations to illness.