The Journal of pediatrics
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The Journal of pediatrics · Aug 2013
Multicenter StudyBereaved parents' intentions and suggestions about research autopsies in children with lethal brain tumors.
To determine bereaved parents' perceptions about participating in autopsy-related research and to elucidate their suggestions about how to improve the process. ⋯ Because autopsy can help advance scientific understanding of the disease itself and because parents reported having no regret and even cited benefits, researchers should be encouraged to continue autopsy-related research. Parental perceptions about such studies should be evaluated in other types of pediatric diseases.