Articles: caregivers.
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Palliative medicine · Apr 2021
The monetary valuation of informal care to cancer decedents at end-of-life: Evidence from a national census survey.
Carers' end-of-life caregiving greatly benefits society but little is known about the monetary value of this care. ⋯ The monetary valuation we produce for carers' work is substantial, for example the weekly UK Carers' Allowance only amounts to 7% of our estimated value of £948.86 per week. Our research provides further information on subgroup variation, and a valid carer time instrument and method to inform economic evaluation and policy.
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Caring for a person with dementia is associated with poor mental, physical, and social health, which makes it important to consider how carers are best supported in their caring role to preserve both their and the person with dementia's well-being. At present, a robust instrument to assess carers' support needs does not exist. This study aimed to develop a self-reported questionnaire to assess the support needs of carers of people with dementia. The objectives were to: (1) generate items, (2) pilot test, and (3) field-test the questionnaire. ⋯ DeCANT is a 25-item carer-reported questionnaire that can be used to help identify their support needs when caring for a person with dementia to enable supportive interventions and improve carers' health and well-being.
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An Assessment of Patient, Caregiver, and Clinician Perspectives on the Post-Discharge Phase of Care.
We sought to elicit patients', caregivers', and health care providers' perceptions of home recovery to inform care personalization in the learning health system. ⋯ Patients live the day-to-day of recovery, whereas caregivers and clinicians also contemplate more expansive concerns. Incorporating relevant perceptions into traditional clinical outcomes and concepts could enhance the surgical experience for all stakeholders.
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Revue de l'infirmière · Apr 2021
Review[In the United Kingdom, volunteer caregivers to reinforce COVID vaccination teams].
The United Kingdom, like many countries, is strongly impacted by the COVID-19 pandemic. The vaccination campaign was launched last December. Ghislaine Young, a nurse, and Jim Hodgson, a general practitioner, both retired, are offering their services as vaccinators to help fight this epidemic. By the end of Febuary 2021, more than 20 million people had already been vaccinated.
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The notion of stigma and its influence on the understanding of dementia has commonly been recognized as a great challenge to seeking healthcare services for South Asians in England. The aim of this commentary is to examine how Muslims view, understand and tackle dementia stigma in the context of revivalist Islam, especially among Bangladeshi Muslims within their British communities. This article reflects on the interrelationship between dementia and revivalist Islam among Bangladeshi family caregivers and addresses the question of how revivalist Islam is a significant source of understanding dementia and tackling stigma. ⋯ This piece highlights underlying principles of caregivers religious beliefs in the acceptance of dementia as a disease, and in help-seeking which is influenced by Qur'anic verses and Prophetic traditions. Bangladeshi caregivers' religious beliefs intertwine with their knowledge, perception, and attitudes toward caregiving for their relatives with dementia. Revivalist Islam offers family caregivers an opportunity to explore their inner wisdom through the challenging journey of caregiving for their family members with dementia.