Articles: caregivers.
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This narrative review takes a personal approach in detailing the progression of cognitive decline in a loved one, and the measures taken to care for the patient. The author provides suggestions for a compassionate care plan and advice for clinicians helpful to both patient and caregiver.
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Introduction: Hospital-based supports for families following the death of a child are rare. Virtual interventions may address key barriers to providing bereavement care, but little is known about their acceptability, feasibility, and efficacy. Methods: Our hospital's palliative care program offered a six-week closed virtual support group for bereaved parents five times between 2021 and 2024. ⋯ There were no significant changes in meaning making or quality of life. Conclusion: This virtual support group was acceptable and feasible for bereaved parents. Additional research with larger, more diverse samples and more robust designs is needed.
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J Pain Symptom Manage · Dec 2024
'You want to shield your kids': Patients' and their adult-children's serious illness conversations.
Timely and transparent serious illness conversations (SIC) between family caregivers and patients facilitate high-quality end-of-life care and patients' and family caregivers' mental wellbeing, but frequently do not occur, happen too late, or are incomplete. While social relations and roles shape communication, few studies explore their influence on patient-caregiver SICs. ⋯ The fundamental rebalancing of the parent-child relation and roles when an adult-child cares for their parent creates unique challenges for patients and their ACC to discuss and plan for end-of-life. To encourage timely, effective SICs, clinicians and caregiver services in and outside the clinic need awareness and guidance on how goals of care conversations must incorporate family caregivers' and patients' familial role expectations.
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Critical care medicine · Dec 2024
The Caregiver Pathway Intervention Can Contribute to Reduced Post-Intensive Care Syndrome Among Family Caregivers of ICU Survivors: A Randomized Controlled Trial.
Explore short-term effects of "The Caregiver Pathway," an intervention for family caregiver follow-up, on Post-Intensive Care Syndrome symptoms among families (PICS-F). ⋯ "The Caregiver Pathway" intervention was associated with reduced symptoms of PICS-F in family caregivers of surviving ICU patients compared with controls.
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Pediatr Crit Care Me · Dec 2024
Children Requiring 3 or More Days of Invasive Ventilation: Secondary Analysis of Post-Discharge Change in Caregiver Employment.
To describe frequency of, and risk factors, for change in caregiver employment among critically ill children with acute respiratory failure. ⋯ At 1 and 12 months post-discharge, more than one-in-five children who survived greater than or equal to 3 days of invasive ventilation had a change in caregiver employment and one-in-ten had a change in caregiver(s). Identification of risk factors, such as illness severity and social determinants of health, associated with a significant family change may improve our support of these families.